Sjogren's E-Pals

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As of today (January 16) we will no longer be accepting new E-Pals. As of January 31st the end of the day, E-Pals will be closing. It has been a nice long run of 10 years of service to our members. Current members may request E-Pals until that time, as a last chance to make some new friends. Please be patient with your requests since we expect quite a few requests.
Remember, we have very fun and useful Live Chats as well as a very active Sjogren's Community Message Forum at your disposal.

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E-Pal number 2008-158

Name:  Lynn
Gender: female
Age: 66
Lives in:  Nebraska, Washington & Oregon, USA
Years with : since childhood

About Me: Hello I'm LadyWillow. Had Polio as a child - possible trigger for Fibromyalgia and Sjogrens. Currently married, girls grown and live away from home. Enjoy being creative as a FiberARTist and Photographer, love good movies and interesting books, but miss having the energy to socialize more with others. Officially diagnosed in 1998.
Currently on Plaquenil and Minocin. After being diagnosed and treated for several "stealth" virus, have managed to live a a better quality of life with a strict diet, pacing my energy and high quality supplements. Sleep also improved. Continue to struggle with ongoing fevers, swollen glands, body aches and pains as well as fatigue whenever the body feels stressed.
Willing to share what works for me, and interested in learning about new research. My goal is to maintain and improve my health as much as possible into my "senior" years. /;)

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E-Pal number 2008-157

Name:  Julie
Gender: female
Age: 39
Lives in: Illinois, USA
Years with : 3+ years

About Me: Hi There, I am 39 yo, diagnosed with SS along with multiple other autoimmune diseases, my story probably isn't much different than many of yours. I have two young children and work as an RN. looking for people who can relate with all of this non-sense!

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E-Pal number 2008-156

Name:  Rafaela
Gender: female
Age: 40
Lives in: NY, USA
Years with : 7 months

About Me: I am a single mother of a seven years old boy, I am from the Dominican Rep. and work as a case manager. This a new condition for me, at this time I feel very depreesed and scare, searching for the right treatment and understanding my condition. I am looking for some support and may be some information that help me understand better this condion.

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E-Pal number 2008-155

Name:  Judy
Gender: female
Age: 60
Lives in: NY, USA
Years with : 6 years

About Me: Wish to correspond with someone who has tested negative for SS with blood tests but positive with eye and oral tests including lip biopsy. I am finding it very frustrating to have three drs. tell me "yes" I have SS and one tells me "no" I don't. Also wish to correspond with anyone who is experiencing on-going fatigue, muscle aches, joint pain and numbness in addition to the chronic dry eye and mouth issues

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E-Pal number 2008-154

Name:  Catherine
Gender: female
Age: 47
Lives in: Maryland, USA
Years with : 12 years

About Me: I'm a 47 year old mother of two great school age kids. I was diagnosed with Sjogren's about 12 years ago. The worst thing is the fatigue! I try to exercise every day because that helps me to feel better but I'm still exhausted at night. My husband and friends are very supportive, but of course they don't understand. I would love to have a few email pals that I can 'share' with: our good times, our bad times, any helpful hints for making it through the day. Thanks!

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E-Pal number 2008-153

Name:  Cathy
Gender: female
Age: 50
Lives in: Texas, USA
Years with : 7 years

About Me: Looking for someone to exchange emails with who have the same condition. Enjoy reading, needlepoint, crocheting, golf and TV

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E-Pal number 2008-152

Name:  Vivian
Gender: female
Age: 31
Lives in: Washington, USA
Years with : 3+years

About Me: As of the time of this post, this is my 2nd time being diagnosed with Primary Sjogren's. For the last 2 years I was told I have Lupus with Sjogren's & Raynaud's as secondary syndrome's. Previously, I tried to research Sjogren's online however there really aren't many sites I find engaging. I have a 3 yo son who unfortunately knows all too well of sickness since my symptoms really took a hold of me shortly after his birth. My hope is to find other's who I can learn from and with about this disease

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E-Pal number 2008-151

Name:  Mary Ann
Gender: female
Age: 50
Lives in: PA, USA
Years with : unknown

About Me: I was diagnosed with Sjogren's about 4 years ago, but have been suffering with it's symptoms for many, many years....just never knew what to blame it on. Having "phantom smells" about 4 years ago, a small brain stem lesion was found during an MRI. From there I was misdiagnosed with MS, but I do see a neurologist to keep a close watch on the lesion. This is when I was diagnosed with Sjogren's. I have all the typical symptoms of dry eyes, nose, mouth, but a year ago developed severe bilateral tinnitus, which I have spent a lot of time and money trying to get rid of, to no avail. I'm wondering if anyone here has had tinnitus with their Sjogren's, and if anyone has also been diagnosed with Cohn's Disease along with the Sjogren's?

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E-Pal number 2008-150

Name:  Barbara
Gender: female
Age: 47
Lives in: Texas, USA
Years with : 3 years

About Me: I have recently been diagnosed with Sjogren’s syndrome. I know now that I have had this disease for about three years. I’m having a lot of trouble adjusting to my illness. I use to be the person that made everyone laugh now I spend most of my time alone. I’m a Commercial Property Manager and use to a great deal of stress. My work requires travel and long hours however lately I find it very difficult to hold up to the pressure. I have tried to research Sjogren’s on line and bought a few books to try to make sense out of all of this, I’m not having much luck. I’m looking for a very down to earth person that may be able to help me understand all of this. I also would like someone to just share experiences with. I have good days and bad days. My main problem at this time is Brain Fog, short term memory and concentration level. I never discuss my situation with anyone; I don’t want to be viewed as poor Barb. Nor do I want to worry my family so I pretend that all is fine. I grew up in the Midwest, Mentor Ohio, relocated to Dallas Texas in the early 80’s. I love my home and I have a house full of animals, Married, going on 20 years, three step sons, no children of my own (except my four legged ones). I found this web page and I’m hoping to find some friends not only to share experiences with and learn more about Sjogren’s but I would also like to find friends that like to joke and laugh.

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E-Pal number 2008-149

Name:  Sara
Gender: female
Age: 15
Lives in:
Years with : 5 months

About Me: Hey my name is Sara. I was diagnosed with a mild case of Sjogren's syndrome in June of this year. That is the only thing that I have been diagnosed with so far hope it will be the only one. I have dry mouth, but I have yet had dry eyes. I like to hang out with my friends and family

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E-Pal number 2008-148

Name:  Pat
Gender: female
Age: 55
Lives in: Illinois, USA
Years with : newly diagnosed

About Me: I've been in the healthcare field for 35+ years, married and have two married children, ages 29 and 25. Recent symptoms of dry mouth are driving me crazy. I know Sjogren's manifestations can be much worse but how can I get a handle on the dry mouth since it's causing me a lot of anxiety and insomnia. The muscle aches have been around for about 10 years as well as the fatigue and I've had an easier time adjusting to that compared to the dry mouth and eyes. Just looking for a pal to swap stories so I don't feel so alone. ANY AND ALL suggestions will be greatly appreciated.

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E-Pal number 2008-147

Name:  Rosemary
Gender: female
Age: 38
Lives in: Fl, USA
Years with :2 years

About Me: I was diagnosed last year after YEARS of tests and unnecessary treatments since the doctors couldn't find out what was wrong with me! After reading the couple of comments below, I think I'm pretty lucky. Besides the dryness which I'm handling quite well, the joint pain is not that severe. I barely wear contacts now 'cause I got an ulcer in my cornea compliments of Sjogren's. Anyways, I really hope they find a cure. Let's spread the word! Good luck!

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E-Pal number 2008-146

Name:  Lois
Gender: female
Age: 50
Lives in: Western Australia
Years with :18 years

About Me: I am married living in Perth, work 4 days a week having Wednesdays off. Enjoy playing piano, gardening, nature shows, socializing with friends. Would like to share my Sjogren's journey with someone, particularly in Perth, Australia as I have no contact with SS sufferers. Glyconutrients, a natural product, has been of great benefit to me. Hubby stumbled on this site which I'm hoping will help me find an e-pal.

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E-Pal number 2008-145

Name:  Teresa
Gender: female
Age: 47
Lives in: Ohio, USA
Years with : newly diagnosed

About Me: I am an Intervention Specialist in Akron Ohio. I live in Louisvile Ohio, which is a little town just east of Canton. I have my Masters degree in Education and my license in Special Education. My first husband pass away in October of 2003, We have three beautiful and talented children, Ages F-14, F-22(Military, & Married) Son- 25 ( His son, My first Grand baby 8 weeks. I recently remarried and now have two step-children. I would love to have a friend who I could talk to who understands what living with this is all about. I don't want sympathy just encouragement and understanding.

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E-Pal number 2008-144

Name:  Maria
Gender: female
Age: 32
Lives in: FL, USA
Years with : 1 year

About Me: I apologize for my very-basic English grammar)
Hi, my name is Maria Iglesias, I am 32 years old, married, mother of 2 kids, and diagnosticated with Sjogrens and RA that affect my entire body, from head to toe, an year ago, I am taking plaquenil, prednisone, naproxen and recently diuretics for my every day worse inflammation-water retention.
My eyes and mouth are dry and affected too.

This illness changed my life, that's why, I want to participate at Sjögren's Syndrome Registry at UCSF.

I APPRECIATE EVERYBODYS FEEDBACK, THANK YOU SO MUCH!!!

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E-Pal number 2008-143

Name:  Katherine
Gender: female
Age: 48
Lives in: WI, USA
Years with : 20+ years

About Me: My most concerning issues with Sjogren's are my lung problems, forgetfulness and chronic fatigue or exhaustion. Since I was 16, I remember dentists and hygienists telling me I have poor hygiene (plaque) and brush too hard (receding gums). This contradiction perplexed me for many years before I was finally diagnosed with Sjogren's (light bulb).
My chronic bronchitis, lung infections, exhaustion, coldness, and confusion make me wonder how long I will last. Friends talk about when they want to retire. I just want to live long enough to retire. Often, I feel I won't be around much longer.

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E-Pal number 2008-142

Name:  Tracy
Gender: female
Age: 47
Lives in: USA
Years with : 6 years

About Me: Although diagnosed in 2002, I suspect I have been living with SS for about 8 years. Fatigue, dry eyes, dry mouth, and joint pain are the most troubling symptoms for me. Worrying about worse things like lymphoma and major organ involvement are always on my mind. I've just been denied medical insurance coverage because of SS when shopping around for a cheaper premium after husband's group plan increased by 100%. I am thankful to even have coverage now even at a very high cost. My priorities include my faith in God, my family, and my friends. Would love to communicate with someone similar in age and circumstances

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E-Pal number 2008-141

Name:  Betsy
Gender: female
Age: 55
Lives in: FL, USA
Years with : newly diagnosed

About Me: I am a clinical associate professor at the University of Florida. Ironically, I teach speech-language pathology. I am married and have 3 grown children. I was diagnosed with mixed connective tissue disease (primarily systemic sclerosis with some symptoms of myositis) in 1988. I have been sick since July, and my dentist and physicians think I have Sjogren's. I'm looking for information and advice from others who have Sjogren's.

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E-Pal number 2008-140

Name:  Sue
Gender: female
Age: 47
Lives in: Arkansas, USA
Years with : in process of diagnosis

About Me: I am a 47 yr old grandmother of 5. I have been diagnosed with Sjogren's for 5 years and have recently been diagnosed with Rheumatoid Arthritis. I also have fibromyalgia, depression/anxiety, IBS, Osteoarthritis, degenerative joint disease...and the list goes on. I am looking for someone that I can talk to who understands this illness and can just be a comforter and supporter. I have been married for 8 months and my husband is wonderful. He is always there and tries to understand but unless you actually experience the pain and fatigue and everything else that goes with it you can't fully understand. If you would like an e-pal just drop me a line. I'm a good listener and friend.

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E-Pal number 2008-139

Name:  Mia
Gender: female
Age: 43
Lives in: Texas, USA
Years with : in process of diagnosis

About Me: Hi, grandmother had Lupus, Osteo & RA, mom has RA & Osteo. I've been diagnosed with RA. About to start followup visits and see if I have Sjogrens. Very dry mouth, dry, red, gritty feeling eyes, blurry vision, TIRED, achy joints. Wow, there's people out there that think I'm crazy :). Would love to correspond with someone "in the know".

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E-Pal number 2008-138

Name:  Anna
Gender: female
Age: 46
Lives in: Australia
Years with : 19 years

About Me: Diagnosed with primary Sjogren's after birth of first child when 27, its been many years of dryness, fatique and swollen glands. Five years ago had chemo for non Hodgkin's lymphoma and everything seems to be going ok at present.
Lots of bad and good days. My wonderful husband and beautiful children are what keep me going.

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E-Pal number 2008-137

Name:  Sharon
Gender: female
Age: 50
Lives in: USA
Years with : 14 years

About Me: i am 50 years old w/three children24,21,14. i am always searching for people with sjorgren,s to share informatoon with. i have found a product on line which sounds good. was wondering if anyone has tried it.

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E-Pal number 2008-136

Name:  Sarah
Gender: female
Age: 49
Lives in: MA., USA
Years with : diagnosis pending

About Me: After 10 years of illness I was diagnosed with celiac disease, fibromyalgia and thyroid disease. I worked hard to get my health back and enjoyed 3-4 years of comfort. It's all falling apart now - ANA of 5120, debilitating pain, even my dog has lupus! I'm waiting for new test results, researching lupus and Sjogren's. I've been through frustration and fear, I'm lucky my husband understands. I think I could be supportive to someone new to autoimmune conditions.

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E-Pal number 2008-135

Name:   Corrie
Gender: female
Age: 38
Lives in: Sacramento, CA
Years with : 15

About Me: Hi, My name is Corrie and I live in Sacramento, CA. I have had SS for about 15 years and am getting more diagnosis everyday, it seems. I also have Renal Tubular Acidosis, Protienuria, Reynauds, Hypothyroidism and of course depression and anxiety. I live with my husband and 3 teenagers who all try their best to help and understand me. However, it would be nice to know some people who actually know what I am going through.
I look forward to hearing from some people who know what it is like to live with SS!

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E-Pal number 2008-134

Name:   Chris
Gender: male
Age: 35
Lives in: Laguna hills, CA, USA
Years with : 1?

About Me: 2 years ago, I was admitted to the local hospital with a pulmonary embolism in each lung and a severe lung infection. They never figured out the cause. Almost exactly a year later, I ended up in the hosp for 3 weeks. Learned I have Sjogren's and likely also lupus. Also very high blood pressure. 2nd trip to hosp, had no saliva, could not swallow food hardly, was severely dehydrated. Had a pneumothorax (collapsed lung) month later, and then another hosp visit. Taking anti-coag for clots, anti-malarial for lupus, and hi blood pressure medication, and just drink lots of water for the Sjogren's and use natural tears eye drops a LOT. I would like to talk with others with similar experiences...

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E-Pal number 2008-133

Name:   Jay
Gender: female
Age: 66
Lives in: Ontario, Canada
Years with : 10+

About Me: I was diagnosed after 8 years, every test was performed but it was not until I asked my physician if it could be lupus he did not think so but did the test anyway to rule that out Sjogren's showed up. I have had the eye test which also confirmed this and see my dentist on a regular basis. I enjoy quilting, reading, have two dogs and am looking for someone to chap with.

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E-Pal number 2008-132

Name:   Felicia
Gender: female
Age: 35
Lives in: Washington, USA
Years with : newly diagnosed

About Me: I'm a married mother of 3, in the process of quitting my own in home daycare/preschool business to take care of myself and my family. I've been ill for the past few years but was told it was stress, finally in March 08 my php sent me to a rheumy where i was diagnosed with fibromyalgia. In Sept 08 with new worsening symptoms I had more blood work done and was given the diagnosis of Sjogren's Syndrome. I seem to have lost touch with all of my friends who actually have energy to do things other then work on a regular basis and I don't think they understand the extent of my illness and my limitations. Im looking for friends who understand and whom I can understand and relate with.

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E-Pal number 2008-131

Name:  Dawn
Gender: female
Age: 32
Lives in: Ohio,  USA
Years with : 2

About Me: I am a wife and mother of twin girls. I got diagnosed in 2007 but have been dealing with it for longer. I also have had to have a double parotidectomy because of my disease. I enjoy music and singing and love movies. Just wanting to talk with someone who has Sjogren's and just have someone to talk with about it and not feel like I am alone.

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E-Pal number 2008-130

Name:  Lisa
Gender: female
Age: 42
Lives in: Milwaukee WI,  USA
Years with : 2+

About Me: Greetings- I have read over quite a few entries- I am finding that I am blessed. I have Renaulds & Sjogrens. After being extremely active in the US Navy for 21 years- now I can barely hold down a part time job, make dinner, care for our two children, 9 & 5, before I pass out at night! I also have been in ministry- 20yrs- a pastor's wife for the last 5yrs. Would like to encourage and inspire others as the Lord leads and opens doors. Be encouraged- there is a reason for all of this stuff going on in our bodies!

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E-Pal number 2008-129

Name:  Kim
Gender: female
Age: 29
Lives in: NJ, USA
Years with : pending official diagnosis

About Me: I have been sick with autoimmune related problems for 18 years. It has been very frustrating, scary and lonely. It's hard for others to understand what you're going through. I would like a friend who I can talk to about my illness and can actually know where I am coming from. My labs are confusing and it's not very reassuring when your own doctor tells you that you're a mystery. I'm in pain all the time and am fatigued...I've lost so much of who I am. My IGG levels have fluctuated since I was 12, after being diagnosed with Mono. They are now about 1000 points over the norm on both the first and second subclasses. My ANA is very high with a titer of 640. I also am positive for BOTH SSa and SSb antibodies! I may also have Lupus. Please e-mail me if you'd like to talk. I could use some support as I'm sure we all could.

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E-Pal number 2008-128

Name:  Donna
Gender: female
Age: 54
Lives in: Indiana, USA
Years with : less than 1 year

About Me: I am 54 yr old female have been an LPN for 11 yrs just had to stop working because of Sjogren's and rheumatoid arthritis and lupus. having a lot of bad days right now and trying not to get stressed knowing this is one of my big enemies . needing some one to chat to now and then and hope to get acquainted with others with same problems

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E-Pal number 2008-127

Name:  Elisha
Gender: female
Age: 25
Lives in: NJ, USA
Years with : 3 &1/2 years

About Me: I am 25 years old and live in Oceanport, NJ with my pug who is almost 2, named Harley. I have a wonderful boyfriend who is a fireman and currently lives in VA and works in MD. It is hard to be away from him and I have lost all my other friends because they do not understand this illness and could not deal with me anymore being sick. It is hard to live everyday, I won't lie, and I have just attempted suicide last week by overdosing on my pills and wound up in the ICU. I just couldn't take the pain anymore. As you can see I am very lonely and my parents do not understand anything I am going through. I have every single symptom from this terrible illness and so far haven't responded to any treatments thus far. I have had symptoms for three and a half years and was only diagnosed two years ago. I am on pain medicine every 5 hours because the joint and muscle pain is so bad. I have all four of my eye ducts pluged because they are so dry and have dry mouth and nose. I also suffer from kidney stones and have had 30 kidney stones since 2001. I am always dehydrated and am also have nerve pain and numbness and tingling in my arms and legs. I can't sleep at night due to the pain all throughout my body. The worst pain is in my low back, neck and legs. I am looking for someone to talk to who can truly understand what it means to suffer and be a friend. I can not work due to my illnesses and suffer from depression and IBS as well (irritable bowl syndrome). If you can be a friend, please e-mail me and be my e-pal. I am a sweet caring girl who is a great friend

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E-Pal number 2008-126

Name:  Millie
Gender: female
Age: 66
Lives in: NE, USA
Years with : 1 &1/2 years

About Me: I am semi-retired but work part time as a baker; usually three days a week. I enjoy reading mystery books and am a home body. I find myself having trouble coping with the Sjogren's effect on my mouth (always tender; hard to eat) and not knowing if other symptoms are related to it or something else. I am looking for information as my Dr does not take a lot of time during visits.

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E-Pal number 2008-125

Name: Duncan
Gender: male
Age: 46
Lives in: Midlands, England
Years with : 1 year

About Me: Hi , My name is Duncan and I live near Nottingham, UK. Really noticed I had a problem last Winter/Spring - dry lips, mouth and eyes. Not official yet but Doctor (number 5!) and Ophthalmologist (number 3!) say Sjogren's and I visit the Rheumatologist soon. Don't mind hearing from anyone but I would be interested in any alternate approaches people have taken and also for eyes if people have coped working in air conned environments and staring at a computer screen all day. I am currently having acupuncture/chinese herbs but not with any success. And me.. divorced, two children, like sport and outdoors generally.

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E-Pal number 2008-124

Name: Jean
Gender: female
Age: 49
Lives in: Wisconsin, USA
Years with : 10 years

About Me: Married, 3 children. Work for husband's masonry business. I love quilting, gardening and long walks. I suffer with trigeminal neuropathy. I would like to chat with someone who might understand what it is like to have facial numbness and burning.....

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E-Pal number 2008-123

Name: Kristi
Gender: female
Age: 27
Lives in: IL, USA
Years with : 1 month

About Me: I was recently diagnosed with Sjogren's. I have been battling ITP, low platelets for 9 months. I am looking for someone to give me advice or information about Sjogren's.

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E-Pal number 2008-122

Name: Joanie
Gender: female
Age: 52
Lives in: Canada
Years with : 8 months

About Me: I am Widowed just 6 years, but now in a relationship. I have 4 Son's and 6 Grandchildren. I have been off work a year due to my health issues, but only got a diagnosis of Sjogren's Syndrome in February of this year,also Osteoarthritis. My Boyfriend is a Blues Musician. I love Blues & Many other genres, I am into the self help books and my computer. I'm looking for an E-Pal with same or similar tastes as me & who has Sjogren's & Osteoarthritis, or just Sjogren's.

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E-Pal number 2008-121

Name: Jackie
Gender: female
Age: 45
Lives in: Arizona, USA
Years with : 5 years

About Me: I was diagnosed with Sjogren's about 5 years ago, as well as RA, fibromyalgia, Lupus. I would like to share my experience and treatments with someone else and would like to hear from others about their experience. I have great drs and have learned a lot. And if I could help someone else that would be great!

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E-Pal number 2008-120

Name: Margot
Gender: female
Age: 65
Lives in: Connecticut, USA
Years with : unknown

About Me: I have Fibromyalgia, Chronic Fatigue Syndrome, Post Traumatic Stress Syndrome, Coronary Artery Disease, and Acid Reflux. I saw my primary doc who sent me for an ultrasound. The diagnosis of which was enlarged parotid glands on both sides. My primary doctor referred me to an ears, nose & throat specialist who performed a lip biopsy & sent me for an MRI. The biopsy and MRI suggests Sjogren's Syndrome. I'm so tired, have joint pain and stomach upset. Can someone tell me what tests were performed, and if this syndrome has caused any other immune system illnesses? I would appreciate any information I can receive from those who suffer from this disease. Thank you.

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E-Pal number 2008-119

Name: Caitlin
Gender: female
Age: 17
Lives in: Massachusetts, USA
Years with : 5 years

About Me: I was diagnosed with Sjogren's Syndrome when I was about 13 years old. I am believed to be the only teenager with it all throughout New England. I have had so many struggles through out these past 5 years, I would like to be able to relate to someone who is about the same age as me.

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E-Pal number 2008-118

Name: Bonnie
Gender: female
Age: 66
Lives in: North Dakota, USA
Years with : 12 years

About Me: I am a grandmother and love to golf and quilt. I am dealing with arthritis, Sjogren's and dentures. Am looking for support on these conditions.

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E-Pal number 2008-117

Name: Kim
Gender: female
Age: 19
Lives in: Florida, USA
Years with : 2 months

About Me: I'm a sophomore in college and I would really like to get to know someone my age who is going through the same thing.

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E-Pal number 2008-116

Name: Maya
Gender: female
Age: 28
Lives in: 
Years with : 1 year

About Me: Newly diagnosed and seeking anyone with more information and first hand experiences. I would deeply appreciate anything anyone has to offer in way of what I have described. Thank you in advance and I hope to hear from someone soon.

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E-Pal number 2008-115

Name: Irene
Gender: female
Age: 25
Lives in: USA
Years with : 3 months

About Me: I was diagnosed with Sjogrens in 07/08. I would like to just have someone to talk to who understands what i am going through and who we can share experiences with. I want to learn more about this and want to try to live the most normal life i can.

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E-Pal number 2008-113

Name: Hily
Gender: female
Age: 33
Lives in: 
Years with : 6 months

About Me: I was diagnosed to have Sjogren's Syndrome in the April. I went to throught about 1 year. Now, I take Evox for my dry month. I am relief from the dry month. But I can not get relief about my dry eyes. any one has a good idea for the dry eyes relief to share. thank you very much.

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E-Pal number 2008-112

Name: Kala
Gender: female
Age: 41
Lives in:  Wisconsin, USA
Years with : 1 year

About Me: It has been a year since I was diagnosed with Sjogren's. My story is probably not unique and many other's may have similar tales. I struggled for over a decade with a variety of symptoms, which were more or less brushed off by the doctors, or left unexplained. It was my dentist who finally gave me a clue and sent me to the right specialist. Recently they have added Rheumatoid arthritis to the growing list of diagnosis. It is good to have some answers, but difficult to face at my age. I would like to share my experience with someone and perhaps learn how they dealt with similar circumstances.

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E-Pal number 2008-111

Name: Jack
Gender: male
Age: 43
Lives in:  Kentucky, USA
Years with : 15 years

About Me: Hello, I'm Jack a 43 year old who has been living with Sjögren's for 13 years. I am interested in music, outdoors, and my two great children ages 13 & 11. I am a stay at home dad for the last 10years. Hope to hear from other males with Sjogren's syndrome...Thank You and take care

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E-Pal number 2008-110

Name: Sally
Gender: female
Age: 36
Lives in:  Illinois, USA
Years with : 3 months

About Me: I was just recently diagnosed with Sjogrens, Hashimoto's and Raynaud's. I have been on Plaquenil and Naprelan for 3 months and finally getting relief from years of pain. My 8 year old daughter has been having symptoms of an autoimmune disease since she was 5. She is ANA+ and borderline Sjogrens in April and we are waiting for results from recent blood work. She struggles everyday and it breaks my heart, because I know exactly what she's going through. Is there anyone who can relate to having Sjogrens and children with the disease as well?

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E-Pal number 2008-109

Name: Hortencia
Gender: female
Age: 51
Lives in:  Texas, USA
Years with : 9 years

About Me: I am a 51 year old female that has had sjogren's for 9 years. It took 2 years for Drs. to finally diagnose me. I have been married for 15 years and have a 14 year old son. My husband does not fully understand my illness and what I am going thru. I would like to have a pen -pal so I can relate to someone else with my illness.

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E-Pal number 2008-108

Name: Gregory
Gender: male
Age: 15
Lives in:  California, USA
Years with : 8 years

About Me: Sjogren's has a major impact on my life, and I missed 3rd through 8th grades of school. Now I'm beginning my sophmore year of high school, but my freshman year was REALLY hard because of my disease. I missed 74 days of school last year. There is no one my age I know who has my disease. It would be nice to know if there are others struggling like me.

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E-Pal number 2008-107

Name: Judy
Gender: female
Age: 6o
Lives in:  NY, USA
Years with : 5 years

About Me: Married, three grown children. Work in outdoor/environmental education field. Looking for someone to chat with that has been experiencing symptoms of facial numbness/tingling.

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E-Pal number 2008-106

Name: Linda
Gender: female
Age: 65
Lives in:  AZ, USA
Years with : 8+  years

About Me: I'm retired from the health care field after 21 years and live in the Southwestern United States with my husband. He's a wonderful and supportive man but is dealing with his own issue of visual loss due to advanced glaucoma. I was diagnosed with Sjogren's about 1 year ago though minor symptoms were present for many years. My current symptoms are dry eyes, mouth, aches and pains all over, peripheral neuropathy, decreased energy and fatigue, etc. These symptoms seem to be progressing slowly as time passes. I suspect most of you can relate here. I try to start every day with a positive attitude and believe a sense of humor is essential in life - especially in times of adversity. Once in awhile the Sjogren's gets on top of me, but not too often. I love to read, tackle minor household projects (when I feel up to it), walk my dog, share a swim with my husband, chat with dear friends (they all live in other states) and enjoy the beauty of nature. I would like to communicate with another person or persons who have Sjogren's so we can exchange feelings, ideas, treatment options, etc. It's good to know there are people out there who can empathize with us.

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E-Pal number 2008-105

Name: Linda
Gender: female
Age: 37
Lives in:  New Mexico, USA
Years with : 1 year

About Me: I am a single mom of 2 teenagers (one just started college pre med) and very proud of both of them. I have had a lot of problems over the last year related to ss. I would like to talk to someone who understands. I love going to concerts-usually with my kids, movies, not much for outdoor stuff-too sun sensitive, travel.

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E-Pal number 2008-104

Name: Jeanne
Gender: female
Age: 41
Lives in:  MI, USA
Years with : 13 years

About Me: Hi! I would like ever so much to find a friend with Sjogren's. Someone to connect with and share tips and tricks for living with this illness- both mentally and physically. Married for 14 years. My interests include cooking, gardening, reading and yoga. I am always looking for new ways to cope with Sjs and often combine conventional with alternative methods ( Taking Restasis, Lacriserts and fish oils have given me my "eyes" back!) Look forward to meeting you.

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E-Pal number 2008-103

Name: Barbara
Gender: female
Age: 34
Lives in:  FL, USA
Years with : recently diagnosed

About Me: I am married with 2 kids. I love horses (I live on a horse farm), I also love scrapbooking. I am looking for someone who understands what I am going through. I am trying to be positive but yet trying to figure out this out. It has slowed me down (fatigue) and just looking for someway to get through this! Hope to find an e-pal! :)

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E-Pal number 2008-102

Name: Kellee
Gender: female
Age: 35
Lives in:  NSW, Australia
Years with : 1 year diagnosed

About Me: Hi I am relatively new to serious Sjogren's happenings. I am currently dealing with all this and trying to work at the same time. I am looking for anyone to share this journey with as we all need each other. I am especially interested in corresponding with other dealing with Sjogren's while maintaining a career.

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E-Pal number 2008-101

Name: Les
Gender: male
Age: 44
Lives in: TX, USA
Years with : 1 year

About Me: I was diagnosed using a blood test, in July. I have had symptoms severely since April. I have dry eyes, mouth and very sore muscles. I am 44yo male in TX. I would like a e-pal my age or younger, who may have been recently diagnosed too.

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E-Pal number 2008-100

Name: Annette
Gender: female
Age: 44
Lives in: Scotland UK
Years with : 13 years

About Me: I have had Sjogren's syndrome for 13 yrs, now I also have Rheumatoid Arthritis and Lupus. I am Married with a family who are all very supportive, but would like someone to talk to that can relate to how I feel at times.

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E-Pal number 2008-098

Name: Sherri
Gender: female
Age: 53
Lives in: USA
Years with : 20+

About Me: I have had Sjogren's for all of my adult life. I suffer its affects daily. I have other autoimmune issues and don't really know which is related to what. I move a lot and have never had a doctor who explained exactly how many symptoms are Sjogren's related. I'm going through a rough time and would love to have a pal who knows what I'm going through. So many don't even know what I'm talking about, including some medical professionals. Misery Loves Company. I definitely need some company. What a great sight to offer to us PWC's. Thanks, Sherri

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E-Pal number 2008-097

Name: Natalie
Gender: female
Age: 37
Lives in: Australia NSW
Years with : 1 week

About Me: Hi, my name is Natalie, I am 37. Live in Sydney, Australia with husband and 2 boys. I am an architect and interior designer. I've have had symptoms for about 3 years. My doctor kept on saying nothing is wrong with me and I was becoming a hypochondriac after going to her each fortnight with a different ailment, even suggesting I see a shrink. It was me who discovered what I had over the internet and organized an appointment with an immunologist/neurologist. I have peridontitis, peripheral neuropathy, nail ridges, high blood pressure, muscle spasms, dry eyes, fluid in middle ear, dry eyes, dry skin, major hair loss, rashes, severe allergic reactions, fevers and chills, panic attacks. What is weird I ran the gold coast marathon 4 weeks ago ( but had chills during the event), 2 weeks ago did bloods for immune system which was all over shop, have a MRI on this sat and will be told what drugs I have to take next Tuesday by the professor. I am so glad I found this website with other people in the same situation, as the last 6 days I thought I was going to die from this. I now know there is other people in the world in the same situation. And I am truly thinking of you all.

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E-Pal number 2008-096

Name: Becky
Gender: female
Age: 35
Lives in: Idaho, USA
Years with : less than 1 year

About Me: I have only recently been diagnosed and am feeling very overwhelmed and frustrated. I am young to have the syndrome and am having a hard time dealing with the fact that this is something I will have live with for the rest of my life. I am also having a hard time finding medicines that I can take because of the side effects. I am looking for someone who has had experience with the syndrome and that I can talk to. My husband is also having a problem dealing with me being sick. We could both use some help! Thank you!

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E-Pal number 2008-095

Name: Leticia
Gender: female
Age: 48
Lives in: Texas, USA
Years with Sjogren's: 14 years

About Me: A shoulder to lean on and share various symptoms and medication regimen. I am really feeling down right now. I am a mother of a wonderful 27 year old son, have a supporting family, and partner...but I don't think they Really get it you know?

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E-Pal number 2008-094

Name: Elna
Gender: female
Age: 75
Lives in: Iowa, USA
Years with Sjogren's: 1 &1/2

About Me: I am a christian. I love nature & country. I like to decorate & organize. I would love to have an e-pal with both Sjogrens & Lymphoma which I have. I had my parotid gland removed which had the Lymphoma in it. My greatest struggle from day to day is my dry eyes & dry mouth. God Bless you for this web

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E-Pal number 2008-093

Name: Rick
Gender: male
Age: 52
Lives in: Wisconsin, USA
Years with Sjogren's: 8+

About Me: Fun stuff first. Love to cook, write, shop, photography, and make movies. Good sense of humor. Currently, disability rights advocate. Married, 5 children, 3 through special needs adoptions. 1 granddaughter.
Diagnosed with Sjogrens and peripheral neuopathy June 2008. Symptoms 8+ years. On Plaquenil and Neuronton. Waiting for relief. Good listener. Looking for friends male or female to talk about dealing with Sjogrens, decisions about working, family relationships, changing your lifestyle, and how to have a “life” with Sjogrens

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E-Pal number 2008-092

Name: Delilah
Gender: female
Age: 37
Lives in: Ohio, USA
Years with Sjogren's: 2 months

About Me: Hello, I am a married mother of one who works full time. I was recently told I have "probably" sjogrens. I have dry eyes (extremely positive shirmers test), dry mouth, dry skin, joint and muscle pain, fatigue and digestive issues. My doctor ran blood tests but they were all within normal ranges. The rheumatologist said even though the tests came back negative I still need to be treated for the symptoms and she will continue to test and monitor me every six months. I would like to talk with someone with similar issues concerning both life and disease.

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E-Pal number 2008-091

Name: Robyn
Gender: female
Age: 51
Lives in: Nevada, USA
Years with Sjogren's: 29

About Me: I am 51, divorced, with 2 sons (20,22). I was diagnosed with arthritis when I was 22. At the time, they told me it was lupus. A few years back, they changed the diagnosis to sjogrens syndrome. I am currently taking plaquenil which seems to be working fairly well.

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E-Pal number 2008-090

Name: Wendy
Gender: female
Age: 45
Lives in: UK, Merseyside
Years with Sjogren's: 2

About Me: Hi I'm married with 1 grown daughter and 1 new grand daughter.  Work part-time as a receptionist, enjoy theatre, cinema, eating out and family history. Love to share the fun and good times with someone as well as helping each other on the bad days, I'm a good listener and try to find the positives in life. DXd 2007, but probably had for many years.

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E-Pal number 2008-089

Name: Heather
Gender: female
Age: 42
Lives in: California, USA
Years with Sjogren's: 14

About Me: I was diagnosed in 1994 after the birth of my first son: chronic fatigue, memory loss, dropping things, hurting all over. I now have 2 boys and am divorced. Six years ago I was also diagnosed with Diabetes Type 1. This disease is like a roller coaster - up/down, good/bad. I have lost all my bottom teeth and wear a denture. Have RA which inflames at worst times. I am currently suffering from a continual issue with Hives (4 months now). Anyone else suffering from a condition that "turns on" and won't "turn off"? About to start Beta Blockers...

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E-Pal number 2008-088

Name: Lindsay
Gender: female
Age: 26
Lives in: Pennsylvania, USA
Years with Sjogren's: 3

About Me: I was diagnosed with Sjogren's after 5 years + of symptoms. I am still experiencing new symptoms and trying to find the right medications/therapies to help get through day by day. I work full-time, recently married and have an 8 year old stepson. I would like to have children, but know that I am at greater risk due to the positive blood markers. I would like an E-Pal of similar age/situation for general support and to share similar experiences.

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E-Pal number 2008-087

Name: Kim
Gender: female
Age: 51
Lives in: Tevose, Pennsylvania, USA
Years with Sjogren's: pending diagnosis

About Me: I am happily married with 3 grown sons and 5 beautiful grandchildren. I was very active; grandchildren, traveled, skied, hiked, fished with my family. I have been sick for 6 years and about 20 doctors latter. I began with severe headaches, fatigue, brain fog, very bad, and frequent menstruation. Thought it was my uterus - so they took that out - it was diseased, but I continued to get sicker and sicker. Saw so many specialists, some blew me off as a nut. Feb 2006 developed a severe rash- Biopsy was positive for Lupus - Diagnosed with SLE not systemic- Blood work looked great! Started to see a Rheumy in OCT-2006 said I had Fibro or CTD. Fired him in April 08 when I found out I had a SEVERE Vitamin D deficiency- that he missed for 2 years. Have a new Doc that did many tests and a lip biopsy waiting for results tomorrow I am convinced I have sjogrens-My Blood work is always ok except sometimes elevated sed rate. My current symptoms are dry eyes, swollen glands in neck, headaches, fatigue, ulcers in my mouth, throat, nose, PAIN every where, but neck, mid and lower back, ribs are killing me. I take too many meds to list and have been on Steroids for 18 months. They have begun to wean me off which is causing me to feel worse. If that is possible. I would like to talk to someone that can relate. My family is supportive, but they could never get how bad this can be at times. I feel like I am whining! I am working full time, but will not be able to work much longer. I cannot keep this up and I have developed some cognitive issues recently.   Hanging in there.

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E-Pal number 2008-086

Name: Linda
Gender: female
Age: 56
Lives in: Texas, USA
Years with Sjogren's: 25

About Me: Hi. I am a mother of 4 grown sons, 17 grandchildren. I am happily married. I was recently diagnosed with Sjogren's but have gone to MANY doctors over the last 25 years to try to find out what was wrong. I literally thought I was going to die before I could find answers. I'd be happy to just chat with someone else with this experience!

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E-Pal number 2008-085

Name: Shanon
Gender: female
Age: 39
Lives in: not specified
Years with Sjogren's: less than one

About Me: Just looking for someone that can understand what I am going through. I have very supportive family, right now, I need someone that understands.

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E-Pal number 2008-084

Name: Stephanie
Gender: female
Age: 44
Lives in: Dallas, Texas, USA
Years with Sjogren's: 3 1/2

About Me: Hello. I wanted to ask some questions about Sjogren's. Specifically, the name of a great rheumatologist in the Dallas area familiar with this syndrome. My experience has been that rheumatologist do a great job of diagnosing the problem but not so much with re: to treatment. Any ideas???

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E-Pal number 2008-083

Name: Stephanie
Gender: female
Age: 31
Lives in: not entered
Years with Sjogren's: not yet diagnosed

About Me: I am 31 years old, married and a mother of four. I have not been officially diagnosed yet. I am looking for someone that has knowledge on Sjogrens and could give me advice. I have have two positive ANA and SS-a positive tests. Dr's do not think Sjogrens but I do. I do not have classic Sjogrens symptoms like dryness but extreme muscle burning and pain. I would love to learn more and make friends in the process.

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E-Pal number 2008-082

Name: Debbie
Gender: female
Age: 48
Lives in: New Jersey, USA
Years with Sjogren's: 2+

About Me: Hi, Was diagnosed with SJS about 2 years ago after being evaluated for MS. Had small white lesions on MRI, abnormal nerve conduction of arms and legs, extreme fatigue and body aches, and heat intolerance. Although my blood work was negative for SJS, other red flags were present and I was diagnosed on my symptoms by a rheumatologist. I also have fibromyalgia (15 years), polyarthritis, osteoarthritis, GERD, dry eyes and mouth, terrible joint and rib pain, brain fog, etc. My lip biopsy was equivicol, but my Schirmer's test and Rose Bengal staining were positive.
I have been married to my best friend and soul mate for 26 years and have 3 grown daughters (23, 21 and 20). All are very supportive and help me out alot. I do what I can when I can. Some days are better than others. I had to quit my job as it involved too much computer work and my eyes and my hands couldn't take it. I love to listen to audio books (since I have blurry vision due to the dryness), sew, collect recipes, bake and cook, and be with my dog Bowser (schnoodle). I try to remain positive from day to day and take things one day at a time. When I can get out of bed, then it's a good day! I would love to chat with someone who understands (as many family/friends don't). If you're interested -- e-mail me!

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E-Pal number 2008-081

Name: Julie
Gender: female
Age: 31
Lives in: CA, USA
Years with Sjogren's: 2

About Me: Hello, My name is Julie. I was diagnosed with sjogrens 2 years ago. I have dry, eyes, dry mouth and some joint pain. Sometimes I feel like I was dragged and hurt all over. I take plaquenil and feel that it works well. I don't talk to anyone about this, I try to hide the pain and put up a Smile thinking that if I don't pay attention to it, it will go away. I have two children 8 and 11, and a wonderful husband that takes care of me and has helped me get through these difficult times of having a disease. What am I to expect in the years to come? I need sjogrens friends to share my questions and answers.

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E-Pal number 2008-080

Name: Michelle
Gender: female
Age: 49
Lives in: Michigan, USA
Years with Sjogren's: 13+

About Me: Hi, my name is Michelle, and I would love to chat with someone who is dealing with the everyday trials of Sjogrens. Each day certainly isn't easy, but I try to find my happiness in my garden and my crafts which include scrapbooking and card making. I also enjoy reading, but have a little trouble with that because of some cognitive troubles, but I keep trying! I will be married 29 years this September. Not able to have kids, but have a wonderful cat named Rascal.

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E-Pal number 2008-079

Name: Gillian
Gender: female
Age: 39
Lives in: UK
Years with Sjogren's: 8+

About Me: I am a mother of 2 children. I don't work, but I am re-training. Looking to correspond with other Sjogrens sufferers to provide support etc. I support two other family members with Sjogrens'.
I have experienced job issues, doctor issues, money issues and ideally would like to hear from anyone who is interested in religious practice or alternative therapies.
My hobbies are: trying to make the most of my life, voluntary work, reading, camping.

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E-Pal number 2008-078

Name: Michelle
Gender: female
Age: 53
Lives in: Missouri, USA
Years with Sjogren's: 1 year

About Me: Help...I feel like a whiner...I know my family gets tired of me complaining...since my problem isn't noticeable to the outside world...I have Sjogren's and Psoriatic Arthritis ..At one time I was diagnosed with Chronic Fatigue and Fibromyalgia...but since these last symptoms came up...I don't know if those still pertain to my condition. My biggest problem is with the dry eyes and mouth and sore neck and glands. I have been happily married for 27 years to a wonderful man....we have 5 kids and 9 grandkids. I drive a school bus and sometimes the fatigue is just to much...so I take medication to help me stay alert....it helps a lot. I would like to talk to anyone who is in the same position as I am...thanks.

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E-Pal number 2008-077

Name: Anne
Gender: female
Age: 50
Lives in: Ohio, USA
Years with Sjogren's: 6 months

About Me: I just got diagnosed with Sjogren's last week. I've had the symptoms for about 6 months. I fortunately only suffer from the dry mouth, dry eyes right now and pray it doesn't progress. I also have IC. I firmly believe that most of my problems are hormone related somehow. I feel like I've gone downhill since my hysterectomy.
I have two grown daughters not living with us anymore. I've been married for 29 years to my best friend. I love dogs, birds, gardening, reading and I am also an unsuccessful writer but can't seem to stop myself.

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E-Pal number 2008-075

Name: Karla
Gender: female
Age: 35
Lives in: SD, USA
Years with Sjogren's: 3 years

About Me: Hi, I'm a mother of 4 children; 12, 10, 7, & 3. I have only known that I have Sjogren's for a little over 3 years. I'm sure that I have had it longer, but didn't know it. I also work full time with my husband. I'm looking for someone that can understand the total package of Sjogren's, since I don't have anyone here that has ever dealt with it.

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E-Pal number 2008-074

Name: Elizabeth
Gender: female
Age: 55
Lives in: Illinois, USA
Years with Sjogren's: newly diagnosed

About Me: Newly diagnosed. Married with 3 children and 1 granddaughter. Last child will be off to college. Lost my brother and 2 Aunts this year. Moving in with my Dad to care for him. Hubby is disabled with bipolar. Lots of emotional stuff to deal with on top of Sjogrens. Happily been maternity nurse 30 years. Love arts and crafts- learning stained glass. Just want someone to talk with about Sjogrens. Don't want to burn out my family

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E-Pal number 2008-073

Name: Ashley
Gender: female
Age: 25
Lives in: Pennsylvania, USA
Years with Sjogren's: unknown

About Me: Hi, I was just diagnosed with Sjogren's Syndrome a few months ago. I have had some symptoms for years, more noticeable ones for the past 2 years, after I had my son.
I want to know more about this disorder and how those who have it deal with the symptoms. Especially those who also are young, and those with young children.

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E-Pal number 2008-072

Name: Debbie
Gender: female
Age: 53
Lives in: the weeds of Oregon, USA
Years with Sjogren's: 1 week

About Me: like most I think I have had this for many years. the dry eyes, mouth, I thought there was something wrong with my tongue. the pain in my joints thought it was working to hard on my farm. so many docs , then I found and older doc that put all the symptoms into 1 pot and he told me it is sjogrens. have had 2 of test positive both. need some advice. my other job is driving special needs kids. having trouble with fatigue and brain fog. don't know what to do.

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E-Pal number 2008-070

Name: Kelly
Gender: female
Age: 22
Lives in: UK
Years with Sjogren's: 12 years

About Me: Hi I'm Kelly, and I have had sjogrens for 12 years. Was diagnosed when I was 10 so obviously too young to really understand what was going on in my body, apart from the fact that I was ill. The condition is now progressing and am struggling to deal with this on my own. Would love to chat with someone that understands how Sjogrens works

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E-Pal number 2008-069

Name: Leslie
Gender: female
Age: 56
Lives in: Washington, USA
Years with Sjogren's: 3 ?

About Me: Newly diagnosed. Looking for others to talk to about how they live with this syndrome, i.e. what does it look like day to day ..... Get up in the morning, peel your eyelids open with a hot washcloth...do you have periodic exacerbations... will I always have Lacrilube smeared all over my face??? I have a great sense of humor about this so hopefully there is someone out there who has been able to keep the humor up.

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E-Pal number 2008-068

Name: Angela
Gender: female
Age: 28
Lives in: Oregon, USA
Years with Sjogren's: 3 years

About Me: As everyone else here I have been through tests and more tests. About 3 years ago I had Mono and the tired sick feeling never went away. I was recently diagnosed but have had it for 3 years or more. I am a graphic designer at a dental manufacturing company and I enjoy my work. However sometimes it's hard to get up and go. I struggle with finding the energy to do daily activities often. I would love to get married and have a child but am worried I would not be able to take care of it. Does anyone else feel this way? I would love to chat with someone around my age fighting the same life battle.

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E-Pal number 2008-067

Name: Melissa
Gender: female
Age: 54
Lives in: Alabama, USA
Years with Sjogren's: Many

About Me: I was diagnosed with SS almost 2 years ago. I retired early from teaching middle school due to the extreme fatigue and brain fog. I found I could not work out many math problems for my students. I now teach 12 hours a week at a local college-married 32 years -2 children-1 grand-daughter. I had mono at age five and again about age 35. Since mono is glandular fever, I often wonder if this was the start of my problems. At age 14, I had 12 cavities at one time. I have always experienced dryness but really never paid it much attention. Diagnosed with hypothyroidism 15 years ago - have had numerous bouts of bronchitis and pneumonia-continue to have a dry cough most of the time-recently experiencing heartburn which lasts all day-joint and muscle pain seems to be progressing-my eyes stay red and feel gritty-meds are plaquenil, synthyroid, prilosec, cymbalta, clonidine and zocor-would love to share sjogrens' stories

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E-Pal number 2008-066

Name: Rachel
Gender: female
Age: 38
Lives in: NC, USA
Years with Sjogren's: 3 years

About Me: I am a Mom to 4 children ages 12, 8, 4 & 10 months. I enjoy reading, photography, and hanging out with friends. I am looking for someone who understands the frustrations of raising a young family while dealing w/this disease and the maze of medications and treatments and side effects that come with it all.

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E-Pal number 2008-065

Name: Sharon
Gender: female
Age: 52
Lives in: Tennessee, USA
Years with Sjogren's: 1 year

About Me: I am 52 years old. I have two grown daughters. I am married.
I have been married to the same man for 30 years. He has been very understanding during the hunting for answers. Just need to know does anyone have pain and if so. Where. I am having lots of pain in my ribs "squeezing" and my shoulders are on fire. Please talk to me. P.S. What meds are you on?

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E-Pal number 2008-064

Name: Paula
Gender: female
Age: 50
Lives in: Pennsylvania, USA
Years with Sjogren's: newly diagnosed

About Me: Hi, my name is Paula. I have just finally figured out what is wrong with me after about 40+ doctors' appointments in the last 8 months. I keep falling down and am so very tired. My dogs keep on begging to go go go and I feel like I let them down. My friends and family think I'm feeling sorry for myself. But I did find a young neurologist that is helping me. It would be nice to talk with someone who has an understanding of this crazy muscle pain. Thanx! Paula

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E-Pal number 2008-063

Name: Angie
Gender: female
Age: 32
Lives in: Plainfield, IN
Years with Sjogren's: 3 years

About Me: I am here to try to help my grandmother who is 85 years old. My parents and her currently live in Sarasota, FL. They can't seem to find a doctor that can help my grandmother with the pain that she is experiencing, so we are trying to find a doctor in Indianapolis, IN that can help her. If anyone has recommendations please let me know. I would greatly appreciate it!

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E-Pal number 2008-061

Name: LiliAnn
Gender: female
Age: 33
Lives in: Nevada, USA
Years with Sjogren's: 2 years

About Me: I've had SS for 2 years.. but just now got given a more firm diagnosis.. my diagnosis has continually gone back and forth from RA to Lupus to SS. and back. its been stressful. i think i could deal easier if i just knew for sure what i am fighting. I do have alot of worries but because i feel this need to protect my family i walk around with a "all is ok smile". would love to have others to chat with who understand and can help me to understand. be a friend and a someone to share all the negatives/positives. epals of any age is welcome

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E-Pal number 2008-060

Name: Fran
Gender: female
Age: 54
Lives in: Florida, USA
Years with Sjogren's: 4 months

About Me: I was recently diagnosed with both Lupus and Sjogrens Syndrome. I experience severe joint pain in addition to dryness of my mouth, eyes, etc. I also have Common Variable Immune Deficiency. Every time I go to the doctor, he tells me I have a different condition, sometimes it is primary sjogrens, others it is lupus. How can you tell the difference and is it really important to know which is primary?
Thanks!

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E-Pal number 2008-059

Name: Cindi
Gender: female
Age: 47
Lives in: Alabama, USA
Years with Sjogren's: 2 months

About Me: I have only recently been diagnosed with Sjogren's even though I have had the symptoms for years. I also have other autoimmune diseases (POTS and Raynaud's Syndrome), along with other health issues. I would like to correspond with others about this illness to help me better understand it and to compare "notes". I am being forced to retire this month due to my health, after 26 years of teaching and am worried about how I am going to handle it. I enjoy spending time with my 16 yr old daughter, 21 yr old son and hubby. Christian activities are a big part of my life.

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E-Pal number 2008-058

Name: Lori
Gender: female
Age: 43
Lives in: Orlando, FL
Years with Sjogren's: 6 years

About Me: I was diagnosed with SS 6 years ago but since then I think I am developing Lupus also. I am married and I never had children since I have endometriosis also but I have 3 golden retrievers that are my babies. I am looking to correspond with someone via email that has had SS affect other organs not just dry eyes and mouth. SS is affecting my job, not sure how much more I can work and would love to email with someone for support.

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E-Pal number 2008-057

Name: Christina
Gender: female
Age: 29
Lives in: PA, USA
Years with Sjogren's: newly diagnosed

About Me: After 4 years and 2 normal pregnancy I finally have an answer to my unusual low blood counts-primary sjogrens. I am fortunate to have 2 healthy children and a supportive husband who bring so much joy to my life. My symptoms are mild and if it wasn't for pregnancy  blood work I wouldn't even know I had it. At my last dr. appointment he prescribed hydroxychoroquine and I am hesitate about taking it. I don't like to take medication-not even Tylenol for a headache. I am looking for someone who is close in age and possibly from central to share thoughts and share experiences especially regarding treatment and pregnancy.

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E-Pal number 2008-056

Name: Linda
Gender: female
Age: 59
Lives in: Ohio, USA
Years with Sjogren's: 1 year

About Me: I was diagnosed with SS 2 weeks ago, but like many of us, I have had SS for many years. Lived with joint pain, lung problems, insomnia, swollen glands, tendonitis, fatigue. My DO told me "just part of getting old". But just put me on Motrin, and sent me to Physical Therapy, which hurt more than helped. Recently went to Dr. with dry eyes, mouth, and extreme fatigue. My poor eyes looked like they were bleeding from the inside out. I was sent for blood work which proved I had SS. Doc is sending me to Rheumatologist in 2 weeks. I had a very active life before all of this. I ran my own business, loved gardening, painting miniatures, crafting, scrapbooking, reading, playing piano, and playing with my Grandchildren. I'm blessed to have a very understanding, husband, one very precious daughter, and 3 grandchildren, who are the joys of our lives. Would enjoy chatting with anyone that shares this illness, and can give some insight on ways to cope. Been trying to read & research this, but still somewhat scared of what's to come. God Bless!

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E-Pal number 2008-055

Name: Rosemary
Gender: female
Age: 50
Lives in: Wales
Years with Sjogren's: 2 years

About Me: Hello my name is Rosie, I am fifty years old and I live in a small town in Mid WalesI have finally had to give up work due to my Lupus and secondary Sjogren's I am bored!!!I am a single parent and have two boys living at home who are 12 and 14 my other three Children have flown the nest and are doing really well.
I would love to have an e mail pal to communicate with...any offers?

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E-Pal number 2008-054

Name: Linda
Gender: female
Age: 48
Lives in: Maine, USA
Years with Sjogren's: 11 years

About Me: I am a 48 year old lesbian with Sjogren's. I have had the disease for 11 years and am looking for other gay/lesbian people with Sjogren's. I know I can't be the only one out there!

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E-Pal number 2008-053

Name: Stella
Gender: female
Age: 50
Lives in: UK
Years with Sjogren's: 3 years

About Me: Hi I've been married for 27 years and have 3 grown up children 23, 21 & 19. My 2 eldest have now flown the nest and I'm left with youngest son and my lovely Black Lab who are my rocks. Had a normal life up to Dec 2004 when my life was turned upside down with by a major problems to my CNS. Was diagnosed with SS while having tests to see if I have MS. With 3 years down the line I have MS, SS, Raynaud's, possible lupus and many other problems. I try to keep positive and an enjoy life, and would like hear from other sufferers.

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E-Pal number 2008-052

Name: Steve
Gender: male
Age: 50
Lives in: USA
Years with Sjogren's: 1 year

About Me: I'm a 50 year old gay male that was diagnosed this year with Sjogrens, Celiac and Reactive Arthritis. Are there any other gay people with SJS out there that want to chat?
Steve

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E-Pal number 2008-051

Name: Jayme
Gender: female
Age: 49
Lives in:  MS, USA
Years with Sjogren's: ? Birth

About Me: I am single, (my soul mate married someone else), I have 4 dogs ( I did not want to have children due to the many diseases I had been dx with and strong family hx and it was not recommended) but: pepper is 6, teddy is 4, tyler is 3 and killer (kk for short) is my baby 6months, all shitzu's. I was very athletic and energetic at one time now I just dream about doing all of the wonderful things I used to be able to do. I do love to swim, but have to swim at night due to light sensitivity, love to watch tv and movies and so do my pets, bike riding( with my pets). I have had to struggle w/ sjogrens and MCTD for many years and would enjoy sharing my experiences positive and negative, lend an ear and try to help others have happen to them what has happened to me. Email me if you want to share your ups and downs

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E-Pal number 2008-050

Name: Jan
Gender: female
Age: 53
Lives in:  USA
Years with Sjogren's: 8 months

About Me: Hello. I was diagnosed with Lupus and SS 8 months ago. A double whammy. I can handle the fatigue, headaches, and the other icky things. I just can't handle the dry skin. And the peteki is another bothersome ordeal. I am a sun worshipper and now I've been told to stay out of the sun since I break out in nasty rashes. I am looking for others who are going through the same misery with whom to correspond. Look forward to hearing from you.

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E-Pal number 2008-049

Name: Jean
Gender: female
Age: 41
Lives in:  Nebraska, USA
Years with Sjogren's: 10

About Me: I was diagnosed with SS about 3 years ago. I have struggled not only with the disease, but also finding the right Rheumatologist, and FMLA leave issues. Last Fall, I finally decided to get more information on SS. I attended my first Sjogren's Syndrome Foundation Patient's Seminar and found that many of the symptoms that I was experiencing were not in my head, but many others were experiencing the same thing. I am thankful for a strong support system with my family and my faith. They are helping me get through the tough times!

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E-Pal number 2008-048

Name: Susie
Gender: female
Age: 41
Lives in:  IL, USA
Years with Sjogren's: 4 months

About Me: Hi, I a married mother of three boys. We have pets--3 dogs and 3 cats. I am a glass artist: I fuse (melt) it, make glass beads with a torch, do stained glass, do mosaics. I also make jewelry. I am a stay at home mom. I'd like to connect with someone who understands Sjogren's.

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E-Pal number 2008-047

Name: Heather
Gender: female
Age: 44
Lives in: Wales, UK
Years with Sjogren's: 2 years

About Me: I am married, 2 kids, own business which is dying a slow death due to lack of input from sickly owner. Every day seems to present a new health challenge. Unlike most people I am not on any meds. I mostly cope through diet, exercise, high pain threshold and a sunny disposition, but I am not the village idiot, I do get fed up with my health and the docs. If you would like to chat about SJS, Lupus, Angina or any health issue I will be glad to offer the understanding of a fellow sufferer.

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E-Pal number 2008-046

Name: Becca
Gender: female
Age: 45
Lives in: Nebraska, USA
Years with Sjogren's: 2 years

About Me: I am married and have 3 adult children. I have had a long and frustrating journey to my diagnosis. I also have MCTD. I am looking for an E-pal because I need someone to bounce symptoms off of, someone that understands me and my symptoms, struggles etc. Just looking for a Sjogren friend

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E-Pal number 2008-045

Name: Hartensia
Gender: female
Age: 46
Lives in: Texas, USA
Years with Sjogren's: 4 years

About Me: Hello my name is Hartensia and I live in Houston, Texas. Im a single mom of a 6 year old daughter. I found out I had SS in a visit to the doctor a few years back. I was told time and time again that the only thing that would happen was be the dry mouth and eyes (which I have, my tears hurt), but now I think it effects so much more. Just looking for someone that I can talk to that understands. Nice to meet you.

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E-Pal number 2008-043

Name: Sandy
Gender: female
Age: 59
Lives in: 
Years with Sjogren's: 5 years

About Me: I am frustrated because I have so much I want to do and my body is not cooperating. My symptoms began when I was 20 with Raynaud's Syndrome and have progressed with hypothyroidism, dry eyes, mouth (causing major dental work), extreme fatigue, joint pain, tenderness of tissues and more- now I feel like a wimp for complaining. I would like someone to talk to who can empathize so I don't have to complain to family! I want to have fun!!!!!!!

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E-Pal number 2008-042

Name: Pacian
Gender: female
Age: 31
Lives in: Louisiana, USA
Years with Sjogren's: Unknown, just diagnosed

About Me: I am new to this diagnosis, but have a sneaky suspicion it has been lurking for a while. Looking for someone closer to my age or in LA who can share with me. i love music and teaching. I play violin, have a loving husband, 14 month old daughter, and a twin with no symptoms. Not miserable except that I have a tendency to over think and over research. I am really good at scaring myself and want someone to temper this with reality.

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E-Pal number 2008-041

Name: Kathryn
Gender: female
Age: 24
Lives in: PA.  USA
Years with Sjogren's: 1

About Me: I am handicapped, I live with my mom, dad still. I LLLLLLLLLLLOOOOOOOOOOOOOOVVVVVVEEEEEEEEEEEEEEEEEE to sing, LLLLLLLLLLLLLLLLLOOOOOOOOOOOOOOOOOVVVVVVVVVVVVVVVVEEEEEEEEEEEEEEEE to horseback ride too. I have Raynaud's, I think I have Sjogren's too but not sure so if there is ANYONE, ANYONE AT ALL out there that can tell me all of the symptoms please write to me thanks.

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E-Pal number 2008-040

Name: Michele
Gender: female
Age: 44
Lives in:  Louisiana, USA
Years with Sjogren's: 2 ?

About Me: I have been suffering with symptoms for the last two years, however, have only recently been diagnosed with Sjogren's and RA. I have survived much, including Hurricane Katrina, but feel as though I might loose the fight against this one. I struggle most with the lifestyle adjustments I have had to make and the amount of medication I am on. While I am only 44, I am feeling very old (especially when shopping with my 70-year-old mother who walks beside the motorized cart I must use). I joke often about the disease processes, but am feeling lonely in my battle against the diseases. No support groups in my area. Just looking for someone who knows what I go through.

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E-Pal number 2008-038

Name: Kelly
Gender: female
Age: 60
Lives in: PA, USA
Years with Sjogren's: 4+ years

About Me: It took 5yrs and tons of Dr's to diagnosed me with Sjogrens. Main symptom was swollen parotid glands in my face. Would happen every few days and very painful. Had it under control for years with immunosuppressive meds until now. Now Dr. wants to put me on a cancer medication methotrexate and has serious side effects. Anyone with same symptoms please email and let me know your outcome

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E-Pal number 2008-037

Name: Kelcie
Gender: female
Age: 60
Lives in: Ohio, USA
Years with Sjogren's: 1 years

About Me: I was just diagnosed today. In reading about this syndrome it seems I have had it for years. I have had dry eye since childhood and was always thirsty. I have arthritis and had polio as a child. Also diagnosed with fibromyalgia. I have had a hip and knee replacement and spinal fusion. So pain is a part of my life already. I would like to have someone to talk to about what I learn and what they know already. The support of someone who knows how it feels is a good thing! Thanks.

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E-Pal number 2008-036

Name: Rashel
Gender: female
Age: 38
Lives in: Georgia, USA
Years with Sjogren's: 2 years

About Me: Married with 4-year-old twins, I was "diagnosed" about 2 years ago (blood tests inconclusive, but PCP, opthal and rheum agree there is something there).

At first I just noticed the dry mouth, dry eyes and fatigue. I say "just," but those symptoms sent me into a tailspin of depression. I thought I would never get my life back. However, I AM finally working my way back to the active, happy and engaging person I was a few yrs ago.

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E-Pal number 2008-035

Name: Amy
Gender: female
Age: 35
Lives in: Ontario, Canada
Years with Sjogren's: 6 years

About Me: I have been diagnosed with RA and Sjogrens and the Sjogrens has been my greatest struggle. Finding compassionate health care in this area has been difficult. I wish more people knew about this condition. I am looking for ideas on managing symptoms, especially fatigue! I wish for health and happiness to all those living with Sjogrens.

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E-Pal number 2008-034

Name: Linda
Gender: female
Age: 57
Lives in: USA
Years with Sjogren's: 8 years

About Me: I have been diagnosed with Sjogren's recently this year however, I have had symptoms for the past seven years. I am a Fibromyalgia patient as well (17) years. I create jewelry full time, and quilt part time. I am active but live with pain daily. I'm concerned because summer is extremely hard as I can't seem to handle the heat. I'm hoping someone has experience with this and might have suggestions. Thank you.

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E-Pal number 2008-033

Name: Janet
Gender: female
Age: 52
Lives in: USA
Years with Sjogren's: 1 year

About Me: HI, My name is Janet. I'm looking for new friends who also have Sjogrens. This is all new to me,and I would love to have someone to chat with about symptoms, meds, and what to expect.
I have 3 grown children, 7 Grandchildren. I enjoy animals. I am a Christian. Hope to talk to you soon.
Janet

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E-Pal number 2008-032

Name: Beverly
Gender: female
Age: 65
Lives in: Maryland, USA
Years with Sjogren's: 4 months

About Me: I am newly diagnosed with Sjogren's after having a very active life and few health problems. I am taking each day as it comes but find that each day is very different from the last. Experiencing joint pain & fatigue as main symptoms. Does Physical Therapy help? I am in a health care career still working part time. Interests include gardening, reading, putting together puzzles, & I'm very active in church activities. Hope to share thoughts and experiences with others.

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E-Pal number 2008-031

Name: Judy
Gender: female
Age: 52
Lives in: Washington, USA
Years with Sjogren's: 12 years ?

About Me: I was recently diagnosed 2 weeks ago. My biggest problem is lymph gland swelling and pain. Everything else is secondary to me. I am a Christian and teach quilting, when feeling well and I also sell quilts and dye fabrics. I would like to talk to someone with similar interests and symptoms. I have a great service dog and would like to talk to someone who also has one. I need ideas, too. Thanks!

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E-Pal number 2008-030

Name: Christine
Gender: female
Age: 35
Lives in: New Jersey, USA
Years with Sjogren's: 8 years

About Me: I do not have the normal symptoms of Sjogren's. I work on average 50 hours a week as a veterinary technician and keep busy. I was diagnosed with Myasthenia Gravis 15 years ago, Sjogren's in 2000, based on blood tests and Devic's Disease two and a half years ago. I have a very positive attitude and overcome everything that comes my way.
I am looking for a friend to talk to that understands why some days I just want to rest. I live alone with my dog and it is nice to have some friends who understand how you feel.

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E-Pal number 2008-029

Name: Joanne
Gender: female
Age: 32
Lives in: Australia
Years with Sjogren's: 5 years

About Me: Like most Sjogren's suffers, it probably took over 8 months to be properly diagnosed. During that time in my life I was unable to work and the pain I endured was horrendous.
Prior to my condition, I worked at a University full-time, taught dancing twice a week and competed at National level in kayak marathons. Having to give this all up was heart breaking and I’m sure there are many stories just like mine.
After 5 years I feel like I'm getting back on track, yes I do have my bad days. But I'm back to teaching dancing again. I work full-time too and go out for occasional paddle. I don’t have the energy like I use to and yeps I still have my bad days but I feel like I am now in control of my life. Yay!
My husband and I are thinking of having a child. I am wanting to speak to someone who has had children that can offer coping strategies or any advice would be grateful.
Also, if anyone out there wants to share stories or advice on keeping fit, please drop me a line.

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E-Pal number 2008-028

Name: Rebecca
Gender: female
Age: 55
Lives in: California, USA
Years with Sjogren's: 5 years

About Me: I have been sick most of my life with fatigue and getting sick often. Now I know I am not crazy and it isn't all in my head like my ex husband told me. I have been having weird symptoms lately that are causing me concern. I get agitated and experience anxiety and panic even....also worry about myself getting lymphoma.....reading about Sjogrens sometimes makes it worse! Would love to talk to someone about the worry and anxieties of Sjogrens.

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E-Pal number 2008-027

Name: Kira
Gender: female
Age: 52
Lives in: South Africa
Years with Sjogren's: 8 years

About Me: I enjoy making new friends- some interests are baking, cooking, art, books, exercise, movies, natural remedies. My children have been a wonderful support while learning to adjust & cope with the frustrations, weird symptoms, of life-altering secondary sjogrens. Cant tolerate loads of medications; use natural remedies wherever possible. Sahara Desert on my tongue. Only those who have Sjogrens can truly understand how we feel and I dont know anyone else who has this. It can be very lonely as other people think "you look very well". I want to hear from you-lets work through this together exchanging thoughts, sharing ideas, treatment, good and bad days.

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E-Pal number 2008-026

Name: Maya
Gender: male
Age: 28
Lives in: NC, USA
Years with Sjogren's: unknown

About Me: Other than handling my illness, I need to be professionally active. I will just be starting a career and need to financially support myself. But the journey is tough. What I am looking for is a friend with whom I can not only talk about our illness but more importantly also talk about how we can cope up with this illness and how we can live life as normally as possible. I'm looking for a pal of my age, and ideally who is pursuing an active professional life.

I'm a positive person and have a very good aptitude when to comes to empathizing with people and helping them through the difficult times

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E-Pal number 2008-025

Name: Tracy
Gender: female
Age: 39
Lives in: Ohio, USA
Years with Sjogren's: 2 years

About Me: I really still am trying to learn more, as my symptoms and PAIN are getting progressively worse, some days I think I am going to die in pain. My GP does not know anything about Sjogrens and my rheum isn't real educated in it. I am from a small town and getting no where, I have 3 children 17, 12,and 4..I need someone to talk to...

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E-Pal number 2008-024

Name: Kim
Gender: female
Age: 29
Lives in: Maryland, USA
Years with Sjogren's: 5+

About Me: I have been living with Sjogrens for over 5 years. I am recently married and just moved to Maryland. So, I don't really have a support system for this. I just thought it was dry mouth and dry eyes, but it seems that there is more. I am looking for support from people who understand.

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E-Pal number 2008-023

Name: Pat
Gender: female
Age: 58
Lives in: Mississippi, USA
Years with Sjogren's: 2 1/2

About Me: Hello, I have had an "auto immune disease" for 14 years. Just 2 1/2 years been diagnosed with Sjogrens and Fibromyalgia. I still work although there's days I wish I didn't. I have had more than a few things going on. My main complaint is the fatigue especially when I have a flare. Would love to hear from you and thing s you find that helps.

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E-Pal number 2008-022

Name: Mike
Gender: male
Age: 60
Lives in: England
Years with Sjogren's: 10

About Me: Hi my name is Mike, a motor racing fanatic. I work as a Stores manager purchasing food and beverages for a hotel which is also a conference centre and sports club. After a number of years of various health problems, just 2 days ago I was diagnosed with sjogrens and am in a daze, sat there doctor talking to me and couldn't really take it all in.
Have been married to my dear wife coming up to 38 years, 2 children and 2 grandchildren, love them all so much.
Would really appreciate talking to anyone about this syndrome so I can get a grip of my illness

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E-Pal number 2008-021

Name: Beth
Gender: female
Age: 32
Lives in: Massachusetts, MA
Years with Sjogren's: 3+

About Me: Hi there! I have had SJS for over 3 years now (you know how it is, started years and years ago but finally after a zillion doctors, I know what it is), started with a flare of fatigue and mono, never stopped. Sometimes it really affects my life. I can't move some days, from both pain and fatigue! I have the usual dry skin, mouth, etc and big joint pain that just won't stop and tiredness that is sometimes out of this world. My Rheumy is good but tells me there's not much out there on it. I want to move along in life with SJS, get married and have kids but I am concerned about having/caring for a baby. Looking to chat with someone who is around my age to discuss how to make the most of the best years of our lives!!!

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E-Pal number 2008-020

Name: Lauren
Gender: female
Age: 24
Lives in: California, USA
Years with Sjogren's: 7 years (but have had symptoms my whole life)

About Me: I was diagnosed with Sjogren's about 2 years ago, but I've been really sick for the past 8 years. My Sjogren's is complicated with CNS involvement, peripheral neuropathy, Autoimmune Pancreatitis, Autoimmune Hepatitis, Hashimoto's Thyrioditis, Fibromyalgia, and severe arthritis that currently has me in a wheelchair. I've spent a lot of time in and out of the hospital. I live my my mom and my dog. I also have a full time caretaker who helps me with day to day things.
I love to read and am an aspiring novelist. I'm a film buff and was attending film school before I got sick. I am also a huge computer nerd and spend my free time doing game design and building websites and social networks. I am addicted to scrapbooking and all forms of arts and crafts.
I'm looking for someone to talk to and form a supportive relationship with so neither of us has to go it alone :o)

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E-Pal number 2008-019

Name: Paula
Gender: female
Age: 47
Lives in: Nebraska, USA
Years with Sjogren's: Diagnosed 4 1/2 yrs. ago, though probably had longer

About Me: I suffer from joint pain, dry eyes, dry mouth, fatigue, brain-fog at times, and short term memory loss. I doctor with a wonderful rheumatologist and monitor symptoms regularly; I take several medications. I work at a high school as a paraeducator and part time at a public library...love both jobs. I am a misunderstood Pastor's wife and would love to talk to another Sjogren's patient...one who gets being "me". I love my family, reading, movies, and my chocolate lab.

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E-Pal number 2008-018

Name: Melanie
Gender: female
Age: 41
Lives in: UK
Years with Sjogren's: 1 Month

About Me: Hi, my name is Mel and I'm 41 years old, married with 1 daughter. I was only recently diagnosed with Sjogrens Syndrome and for 18 months now I have been suffering from thyroid, Raynaud's and painful joints, especially in my hands and fingers (rheumatoid arthritis), I also have swollen fingers and over the last couple of months have dry mouth. Would be great to speak with other people about this as lately I have started to feel quite alone with this condition. Look forward to talking to you and sharing thoughts and views.

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E-Pal number 2008-017

Name: Heather
Gender: female
Age: 37
Lives in: NC, USA
Years with Sjogren's: 20 years?

About Me: Believe that I have had Sjogren's since early teens when I was diagnosed with dry eyes but am only now in progress of being diagnosed with SJS (Dr.'s appt late January 2008). I think I have been in denial a long time and fighting almost all the symptoms since college, particularly fatigue. 'Still manage to work full time as an underwriter at a small local bank and have good days and bad. Would like to talk with others with Sjogren's...

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E-Pal number 2008-016

Name: Karen
Gender: female
Age: 41
Lives in: Wales, UK
Years with Sjogren's: 2 years

About Me: I am a mother of two, a 15yr old son and a 8yr old daughter. I have suffered from the regular symptoms dry eyes, joint pains etc., I am no longer able to wear contact lenses which is a big thing for me as i dont feel comfortable in glasses, I have also suffered from lyphoid insterstatial pneumonia (please excuse spelling) for which I am taking steroids I had to have a lung biopsy to confirm this which was not very nice It would be interesting to know if anyone else has this and if they have been able to get rid of it and come off the steroids completely, I also get a lot of pins and needles in my arms and hands which can last for days on end, and although not really painful can be a problem when in work. Thanks again I was really pleased to find your website as I dont know anyone else with this condition and it does sometimes get me down when I am really tired and unable to talk to someone who would understand why just reading the comments on your site make me feel that I am not alone.

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E-Pal number 2008-015

Name: Nancy
Gender: female
Age: 52
Lives in:  Yucca Valley , Ca
Years with Sjogren's: not sure

About Me: Hi, My name is Nancy , and I have just been diagnosed with Sjogren's , although the more I learn about it, the more I realize that I've had symptoms for years and years, just never got it put together until the dry eyes?mouth/nose hit recently. I am in shock , having been "supermom and "super Grandma" for years and suddenly finding it difficult to do anything , and a fearful bundle of nerves as I contemplate my future. I am a Christian and I am a full-time homemaker , married for 37 years . I have two daughters and 12 grandchildren, who are the lights of my life . Just want to chat with someone who can understand what's going on with my body and mind .

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E-Pal number 2008-014

Name: Karen
Gender: female
Age: 53
Lives in:  Pennsylvania, USA
Years with Sjogren's: 2 months

About Me: I was just diagnosed and have much to learn, I work in a hospital coffee shop as asst manager. I have 2 grown children and 6 grandchildren and a disabled husband, I am 53 years old. And have many questions

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E-Pal number 2008-013

Name: Winston
Gender: male
Age: 20
Lives in:Pennsylvania, USA
Years with Sjogren's: 1

About Me: Just diagnosed. My main symptoms are extreme fatigue, a dry mouth, and body aches and pains. I also suffer from bad allergies, I am not sure if this is related to Sjogrens Syndrome, but I have constant nasal congestion and a sore throat. I am a Junior in college and am just looking for some guidance to cope with my new diagnosis. Looking for information from people my age and others. Thanks

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E-Pal number 2008-012

Name: Linda
Gender: female
Age: 49
Lives in: Seminary,  Mississippi
Years with Sjogren's: 2 weeks

About me: I AM A VERY ACTIVE CHRISTIAN PERSON, OR USED TO BE ACTIVE!  HAVE BEEN MARRIED 32 YEARS AND HAVE A WONDERFUL 19 YEAR OLD SON I HAVE ALWAYS ENJOYED GARDENING, PAINTING, CRAFTS, FISHING WITH MY HUSBAND, NOW I JUST WANT TO STAY ON THE SOFA. I WORK AS A FLORAL DESIGNER PART TIME, AND LOVE MY JOB, BUT IT IS GETTING DIFFICULT BECAUSE OF HAND  ARM AND NECK PAIN. THEY THOUGHT I MIGHT HAVE LUPUS, BUT NOW MY DR. SAYS HE THINKS ITS SS. I HAVE ALL SYSTEMS OF SS AND LUPUS. JUST NEED TO TALK TO SOMEONE WHO HAS THE SAME AND ABOUT MY AGE.

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E-Pal number 2008-011

Name: Jayne
Gender: female
Age: 45
Lives in: UK
Years with Sjogren's: 2

About me: Hi, I was diagnosed with having Sjogrens 2 years ago but I'm sure I've had it much longer than that. I also have it secondary to Rheumatoid Arthritis, although I am thankfully not too troubled with that (at the moment). I am happily married and working full time and like to always have a sunny nature and I try to think positively and see the funny side of life. It would be just so lovely to chat to others in similar positions who understand what life is like living with Sjogrens.

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E-Pal number 2008-010

Name: Judy
Gender: female
Age: 44
Lives in: Colorado, USA
Years with Sjogren's: 8

About me: was diagnosed in 1999, fortunately living in Denver I was able to go to National Jewish. ( voted best respiratory hospital). I have a great rheumatologist and pulmonologist. I have SS and as a result my lungs have been inflamed. I have been on oxygen for 7 years. Soon I will have to go on the lung transplant list. I really don't want to. I have had all the usual symptoms (dry eyes & mouth, joint pain, fatigue, depression, memory loss) and have worked with alternative therapies to subdue them. Some have been successful, others not so much. I also have anemia, osteopenia, GI problems as a result. My biggest concern is with my lung situation. Would really like to talk to someone who has respiratory problems and someone who is using alternative therapies. I have had success with Chinese herbs, auriculotherapy, and acupuncture. I was a flight attendant for 14 years and have not worked since being diagnosed. So I do love traveling but it is getting harder to do, trying to do yoga again love reading and movies, and love watching my 2 children in sports (ages 10 and 13). Would love to hear from someone with similar problems. I also am a support member for Sjogren's foundation. I could possibly help with someone who needs some information?

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E-Pal number 2008-009

Name: Leanne
Gender: female
Age: 40
Lives in: Australia
Years with Sjogren's: 10 years

About me: I was diagnosed 10 years ago when pregnant with my first child. I now have 3 children (4) if you include my husband, 2 dogs and some fish. Was never given much information by my doctors nor given any medication for it, I also suffer with vasculitis.  Would love to hear from someone so we can share information, offer support and listen to each others concerns/worries etc.

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E-Pal number 2008-008

Name: Elise
Gender: female
Age: 9
Lives in: United Kingdom, Nottingham
Years with Sjogren's: since I was eighteen months old

About me: Hiya everyone,
I have had sjogrens syndrome since I was eighteen months old. I have had it the most of my life. It started with big whit lumps at the back of my tabs. I then had to have an ear biopsy. Not long after I had to have a lung biopsy. Then I had to have 2 canulas in my hand and 4 canulas in my legs and feet. When I had my lung biopsy I was put in a room for a few days then I went home. grandad was taking us home but he went the wrong way so it took us 3 hours to get home. When I got home I just layed on the sofa, feeling unwell. I then had bad sickness and diherreoa, I told dad I pooed my pants and he just sighed, put me in the bath, then took me to bed. Then I went to the hospital and came back home for midnight. Then I had a stumble and sprained my leg so I couldn't walk for 2 months. I have only just started walking again now. I have to have an injection of methetrexete once weekly and methyl pred once a week too which is every friday. I have 40mg of prednisolone every day. I have ameprosol every morning witch is 20mg. I have been told that if I dont have this treatment, I will be in the wheelchair position all of my life. love from elisexxxxx

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E-Pal number 2008-007

Name: Magali
Gender: female
Age: 58
Lives in: Oregon, USA
Years with Sjogren's: 15

About me: I am 58 years old and has suffered from SS for the last fifteen years. I work full time and have a lot of energy. I ignored most of my symptoms (as much as I can!) I love life and try to live it to the fullest. My dentist of 38 years has just passed away and I feel lost. I am due to a new clean up and do not have a dentist. I would like to find a new dentist that has some experience with SS. Any suggestions are welcome.

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E-Pal number 2008-006

Name: Jessykara
Gender: female
Age: 30
Lives in: Massachusetts, USA
Years with Sjogren's: 15

About me: I am 30 years old, diagnosed at age 15, although have had symptoms since approximately age 12. I'm just recently starting to realize how much Sjogren's is affecting my life and looking to talk to others around my age.

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E-Pal number 2008-005

Name: Sarah
Gender: female
Age: 26
Lives in: Tennessee, USA
Years with Sjogren's: 2 months

About me: Hi I am newly DX. I am a mother of: 1 two year old boy, 1 five month old black lab rescue, 1 four year old Arabian gelding, 2 evil kitties, part mother to a broke to death mini paint pony and also a loving wife. My interests involve children, horses, cooking and making new friends. My best friend has been DX with Wegener's Disease (another auto immune) and together we are helping each other, but it is always nice to have some more friends to help through the difficult days.

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E-Pal number 2008-004

Name: Glenda
Gender: female
Age: 54
Lives in: Louisiana, USA
Years with Sjogren's: 3 months

About me: I am 54 years old with 1 child 31 and two grandson's age 8 and6. I've just been married for 4 years to my soul mate. Although we have been together for 8 years. I've just been diagnosed with Sjogren's and really didn't know much about it. I'm trying to do a lot of research but at the same time they don't tell you how fast this progresses. I know I can't do the things I use to do and I feel like I'm going down fast. I stay very very active. But the pain is very bad. I'm starting to get rashes, joint pain, dryness is really bad. I enjoy working, we are members of the amicus club which their soul purpose is to help St.Mary's training school that houses handicapped children. We are also members of the HOG'S (Harley owners group) and really enjoy riding motorcycles. I would just like to talk to someone that can tell me what they are going through and what I can expect as time goes by.

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E-Pal number 2008-003

Name: Tina
Gender: female
Age: 51
Lives in: USA
Years with Sjogren's: 6

About me: Hi, my name is Tina. I have just been told I have Sjogrens syndrome. I have felt very bad for a long time but played it off to age. I started by severe dry mouth with no way to make it feel better. I also have dry eyes. I ended up in the emergency room with pancreatitis. My body aches all the time. I have had thrush, and have had swollen lymph nodes. Constant uncomfortable sharp pains in stomach. Have lost 12 pounds since I first started feeling bad. I have a 2 year old and I can't believe I have to feel like this. Would like ideas on my eating the right foods and on how to help the severe dry mouth. Most of all some hope for the future. Thanks, Tina

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E-Pal number 2008-002

Name: Melissa
Gender: female
Age: 28
Lives in: California, USA
Years with Sjogren's: 6

About me: Hi, I've had Sjogren's for about 6 years, but I was only recently diagnosed with it (You know how that goes). I'd like another female near my age to talk to. I am recently married, hoping to have children soon, and I would like to talk to someone in the same boat.  ~Melissa

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E-Pal number 2008-001

Name: Sheila
Gender: female
Age: 38
Lives in: Mississippi, USA
Years with Sjogren's: dx'd a year ago

About me: I'm looking for a compassionate, Christian e-pal. I was diagnosed about a year ago, but never could find much information, especially about the fever and depression. I'm going through a rough personal trial right now, and the depression is worse. I'm a nurse, generally kind-hearted, just hurting right now.

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Sjogren's Syndrome...

is a chronic, slowly progressive autoimmune disease that affects the "exocrine" (moisture producing) glands of the body.

It is classified as a "connective tissue disease."

Sjogren's Syndrome causes dry eyes, dry mouth, and it can also affect other major organ systems. Uncommonly, it can affect the central nervous system. Read more here.