Sjogren's E-Pals

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E-Pal number 2007-157

Name: Kristin
Gender: female
Age: 32
Lives in:
Years with Sjogren's: 5 months

About me: I am a 32 year old female who works in the spa industry who enjoys yoga and living a healthy lifestyle. I am looking for someone in an e-pal who is young preferably around my age who has Sjogrens. I would like some who is optimistic and intelligent who knows how to deal with it. Someone who can support me that understands how devastating it is. That has experienced depression in relation to having been dealt with this and who has overcome it and is happy today. Who also has the patience to deal with someone who needs a lot of support and wont give up. Thanks.

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E-Pal number 2007-156

Name: Joyce
Gender: female
Age: 54
Lives in: Illinois, USA
Years with Sjogren's: 1 month

About me: Recently being diagnosed with Sjogren's I am excited to have e-pals to correspond with regarding this syndrome. I have worked in the healthcare field for over 30 years and as a Medical Staff Coordinator for the past 15 years. My interests are quilting, machine embroidery and reading.

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E-Pal number 2007-155

Name: Diane
Gender: female
Age: 66
Lives in: New Zealand
Years with Sjogren's: 10

About me: After ten years have just been diagnosed with Sjogrens. I am still very active but suffer a lot of pain at times. I still work 4 days a week , love the ballet opera and good movies. I have been on my own for 12 years I am saving up to but a camper van so I can see a bit if the country.

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E-Pal number 2007-154

Name: Flora
Gender: female
Age: 61
Lives in: Illinois, USA
Years with Sjogren's: not sure (at least 5)

About me: My doctor's and I are in the process of determining "if" I have Sjogren's Syndrome. I have had a cat scan and many blood tests. I am confused. One says no that maybe it is a neurological disorder. The other has me on Evoxac and Gabapentin saying it is probably Sjogren's. My symptoms are dry mouth, cotton mouth, EXTREME pain in my teeth (I have very good teeth and have always seen a dentist on a regular basis. So it is not my gums.) Hands VERY dry form the inside out (really weird). Fatigue. Confusion at times. I use saliva substitute and artificial tears. Does anyone out there have these symptoms??? Especially the painful teeth and dry hands????

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E-Pal number 2007-153

Name: Sharon
Gender: female
Age: 57
Lives in: Oklahoma, USA
Years with Sjogren's: 8 (approx.)

About me: I have just recently been diagnosed with Sjogren's; however have had the symptoms for about 8 years. I did not have a doctor who seemed to have an answer for me until this past year when I finally found a wonderful new doctor. She ran a series of tests & tests came back positive for Sjogrens.
I am a wife/mother/grandmother who works part time at a hospital. I enjoy life to the fullest. I am interested in hearing from an E-Pal who also suffers from Sjogren's so that we can share info.

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E-Pal number 2007-152

Name: Cynthia
Gender: female
Age: 50
Lives in: Louisiana, USA
Years with Sjogren's: newly diagnosed

About me: I've recently been diagnosed with SS after suffering with parotid swelling and infections for 6 months now, arthritis pain, severe fatigue, among other symptoms. I have gotten to the point of antibiotics and arthritis meds that just plain make me sick to my stomach. Would like to find someone who has experienced SS for several years who will help me to understand just what is ahead.

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E-Pal number 2007-150

Name: Mary
Gender: female
Age: 41
Lives in: Alabama, USA
Years with Sjogren's: newly diagnosed

About me: I have recently been diagnosed with Sjogren's Syndrome. I would like to find a pal to talk to that can understand what I am going through. My family and friends do not. I know that I'm not alone, but it sure feels that way sometimes.

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E-Pal number 2007-149

Name: Michelle
Gender: female
Age: 34
Lives in: Florida, USA
Years with Sjogren's: 11

About me: I have been living with Sjogrens for the past 11 years. I recently had a lip biopsy and should have the result within a few days. I face is swollen on the right side which started a month ago. I have been on two different antibiotics, steroids, and finally the lip biopsy. Until a month ago I was doing o.k. Now I don't know.

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E-Pal number 2007-148

Name: Marie
Gender: female
Age: 51
Lives in: New York, USA
Years with Sjogren's: 7

About me: I am married with three children. We have a dog and a cat. We live on a small, peaceful lake in upstate NY. I am a consultant for interactive gourmet cooking classes which I started doing in Aug 2007. I have other autoimmune illness, scleroderma, RA, lupus. For the first six years I was exhausted beyond imaginable. But I am sure anyone with our illness knows what I mean. This past year, I have started feeling better. However, I do have my days. My skin as softened as far as SD goes, but I have more outbreaks of eczema. I would love to have a friend that I can support and listen to and they could do the same for me.

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E-Pal number 2007-147

Name: Ashley
Gender: female
Age: 22
Lives in: Michigan, USA
Years with Sjogren's: 2-?

About me: I am a 22-yr. old college student at Michigan State University and just recently graduated this past Summer getting a B.S. in Psychology. In October I went to see a rheumatologist because I was having problems with extreme fatigue, muscle/joint pain. The blood test results show that I have SS-A/Ro antibodies. However, I don't feel like I have the typical symptoms of Sjogrens (no dry eyes or dry mouth), but I do have fatigue, dry skin/eczema. I currently live with my boyfriend of 2 years in an apartment and took this past semester off school to figure out what I want in life.
I would like to talk with other young people about their Sjogren's, especially since I don't seem to have many friends anymore and I feel bad constantly talking my boyfriends ear off! Looking forward to a reply!

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E-Pal number 2007-146

Name: Jan
Gender: female
Age: 57
Lives in: Washington, USA
Years with Sjogren's: 25+

About me: Over 20 years with Sjogrens, multiple rheumatic, multiple arthritis. Done plugs, restasis, Alrex, Antibiotics, any better ideas out there? I can help, somebody can maybe help me. We know: the docs also need help trying to find something. Punctal cauterization has been considered. Send me your experiences and your plans. There has to be a few more ladies like me, eyes from hell for many, many years. And I hope we can help the gals (or maybe the few guys) that are just in this so new.

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E-Pal number 2007-145

Name: Paige
Gender: female
Age: 37
Lives in: California, USA
Years with Sjogren's: 1-7+

About me: I finally got the lip, eye and blood tests that confirm I have Sjogren's - my pain started in my late twenties and dryness in year 2000. I feel very lonely and have a lot of bodily pain. My friends want to plan in advance and I always want to plan "last minute" if I feel good enough! Sharing health finds and laughs would be grand. I have a life partner for 7 years (he is great) and I have 3 children that are dachshunds (I guess having kids with Sjogren's can hurt the baby - I read). Health and happiness to you - in all the ways ya find it!

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E-Pal number 2007-144

Name: Nancy
Gender: female
Age: 51
Lives in: Oklahoma, USA
Years with Sjogren's: 20

About me: I am a mom of four with only one teenager left in the nest. I work full time and enjoy reading, knitting and chick flicks. I had ITP in my early 20's (autoimmune blood disease) which tipped off the docs that I had autoimmune "issues". When I was 30, SjS was diagnosed (sort of) when they found the SS-A, SS-B antibodies. The real symptoms didn't start till my 40's. At that time, I had the "official" diagnosis via lip biopsy. My main symptoms are fatigue, fatigue, fatigue and dry mouth.
I would love to encourage someone newly diagnosed that it's not as scary as it sometimes seems. A pal near my age with a similar history would be great too.

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E-Pal number 2007-143

Name: Dee
Gender: female
Age: 40
Lives in: Texas, USA
Years with Sjogren's: 3

About me: I was diagnosed three years ago, but my doctor thinks I've had it for much longer and managed the symptoms until recently through exercise and lots of rest. After having my son five years ago, symptoms began with chronic fatigue, followed by migratory swelling, then progressed to joint pain, and its been downhill since--chest, back, joint, and muscle pain. Am trying to manage professional career and motherhood, but some days my greatest accomplishment is talking myself out of bed in the morning. Would like to give and receive encouragement from someone in similar circumstances.

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E-Pal number 2007-142

Name: Mia
Gender: female
Age: 53
Lives in: Washington
Years with Sjogren's: unknown

About me: I'm trying to remain optimistic and positive and am finding it to be pretty challenging. I enjoy being as active as I can and I'm learning/trying to find a balance between what my mind wants to do and what my body will allow me to.
I enjoy pottery, cooking, biking, sailing and walking my silly standard poodle. I have a supportive husband and son so I have much to be thankful for. It would be nice though to have someone to correspond with that is living their life with this too.

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E-Pal number 2007-141

Name: Theresa
Gender: female
Age: 38
Lives in: USA
Years with Sjogren's: 10+

About me: I am new to this Sjogren's World. I am not new to the Diagnosis of this illness. Some of my symptoms are dry eye ear pain, tinnitus, Dry sinuses, and dry skin, I have other issues as a result and it is also a secondary diagnosis for me too. I have other AI troubles too. I live to serve the Lord now and I work in a full time in a pharmacy that does nutritional supplements too... Brain Fog too.

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E-Pal number 2007-140

Name: Angela
Gender: female
Age: 35
Lives in: Canada
Years with Sjogren's: 1 month

About me: Hi everyone my name is Angela and I live in Saskatchewan Canada. I started to feel ill with joint pain etc in Dec 2006. Tested positive for ANA 1:2560 and anti-rnp. About one month ago I noticed the excessive dry mouth and itchy scratchy eyes. They tell me it is Sjogrens. Up until this point I was on Plaquenil since 03/07 and my joint pain is pretty controlled. I work full time as a accounting specialist in a job I love but have only had for 6 months. I am single with a new boyfriend. I love to travel and watch movies and read. I looking for anyone who would love to chat with me about this syndrome we all share. I am VERY scared I will not lie afraid of being alone I am an only child from a single parent family. I am very afraid of what the future might hold for me. I have read all the sites I can possibly Google and it sounds very scary. I hope to hear from someone soon.    Thanks.

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E-Pal number 2007-139

Name: Gloria
Gender: female
Age: 57
Lives in: USA
Years with Sjogren's: newly diagnosed

About me: I've probably had SS for many years, only now diagnosed. My fatigue and dry everything I dismissed as being related to not having a thyroid due to cancer. April '07 I was hospitalized with dehydration from unknown virus that attacked me. Have had dry eyes, mouth, skin and abnormal looking tongue and back of throat feels like something is growing there, sore at times and hard to swallow. Would like to talk to anyone who has the same symptoms with their throat and get advise as to where to go to get help.

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E-Pal number 2007-138

Name: Maryanne
Gender: female
Age: 48
Lives in: New York, USA
Years with Sjogren's: About 3, I think

About me: Hi My name is Maryanne. I was told I might have Sjogrens. First they said I had MS. Then "Well we think it is Sjogrens". My ANA was very High. My symptoms have gotten worse and my Dr thinks it is definitely Sjogrens. I live on Long Island New York. I would Love to talk with other people in my area about this as I am Looking for a good Rheumy in the NY area.

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E-Pal number 2007-137

Name: Audrey
Gender: female
Age: 54
Lives in: Illinois, USA
Years with Sjogren's: just diagnosed 9-07

About me: My name is Audrey. I am 54 years old. My husband and I share our home with our dog Pickles we live in a suburb of Chicago, IL. I was diagnosed with Sjogren's, fibromyalgia and osteo-arthritis in September of 07. I'd love to have a e-pal that I could talk to learn about Sjogren's.

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E-Pal number 2007-136

Name: Kim
Gender: female
Age: 50
Lives in: Michigan, USA
Years with Sjogren's: 19

About me: I remember when I was first diagnosed with SS I was terrified at the time not much was known about it. Now much more is understood and when I go to a new doctor I don't always get the "what's that" look. I have four kids and 5 grandkids and worry that they will some day have to fight this stupid syndrome.

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E-Pal number 2007-135

Name: Frances
Gender: female
Age: 34
Lives in: exas, USA
Years with Sjogren's: 3 weeks

About me: I am a mother of three, and was just recently told of my condition. I'm pretty scared, and would like to talk with someone who knows what I am going through. My husband is supportive , but we are both pretty much in the dark with all of this.

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E-Pal number 2007-134

Name: Rhonda
Gender: female
Age: 35
Lives in: Australia
Years with Sjogren's: 3

About me: I was diagnosed 3 years ago and all though my family is loving and supporting it would be nice to talk to someone who knows what I'm going through.

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E-Pal number 2007-133

Name: Courtney
Gender: female
Age: 22
Lives in: Missouri, USA
Years with Sjogren's: 2

About me: I am a college student, getting my BS in engineering. I was diagnosed with Sjogren's at age 19, during my freshman year here. I do have some oral and eye problems, but my main symptoms are fatigue and pain. I am in the process of making a lot of life decisions, and it's scary since I don't know what the future holds and I don't know how my disease will affect it. I am looking for anyone that's been in this similar situation or in general would like to talk about it. Thanks!

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E-Pal number 2007-132

Name: Maria
Gender: female
Age: 31
Lives in: Texas, USA
Years with Sjogren's: 1 week

About me: I would really like to find a friend. I was diagnosed with Sjogren's in October 2007. It would be nice to connect with someone who understands what I am going through. Support is very important, and I would like to offer mine to someone who needs it. Hope to hear from you soon!

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E-Pal number 2007-131

Name: Shirley
Gender: female
Age: 64
Lives in: Pennsylvania, USA
Years with Sjogren's: 10

About me: I'm looking for a friend that has Sjogren's. The doctor are not much help. I come from a small town. I just need someone to I hope you can help me.

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E-Pal number 2007-130

Name: Kim
Gender: female
Age: 46
Lives in: NSW, Australia
Years with Sjogren's: Many

About me: I think I may have had Sjogrens for maybe the past 5 years or even longer, most common in symptoms has been always being so tired. I have dry eyes, mouth, skin, some aches and pains. Got a diagnosis last month have never heard of it before that. I am a single mother and have one son living with me, he also has autoimmune disease which was only diagnosed last December... type 1 diabetic. He has Asberger's as well so I thought being tired was from my busy life with him. I am waiting to see a specialist and am really hoping he can help with the fatigue, I am finding that the hardest thing to cope with. I work 3 to 4 days a week so its hard to function some days. I don't mind who I talk to as long as they can give me some advice about this condition and maybe a bit of support. Thanks.

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E-Pal number 2007-129

Name: Linda
Gender: female
Age: 36
Lives in: New York, USA
Years with Sjogren's: 1

About me: I have been diagnosed with Sjogren's for about a year, but have had symptoms for years. I am a nurse and a mother of 2. I used to be a workaholic. Now I can only work 6 hours a day. I have terrible headaches, slurred speech, difficult time swallowing, generalized pain, facial drooping & swelling, numbness in extremities, slurred speech, mental fog, dry everything. I hope to hear from someone who knows what discomfort I have been going through. I like to walk, read romance novels and spend time with my children. I like movies. I love helping people.

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E-Pal number 2007-128

Name: Joy
Gender: female
Age: 72
Lives in: Georgia, USA
Years with Sjogren's: 7 since diagnosed

About me: Retired RN. Love to travel, read, music, esp. Chopin and Opera, gourmet cooking, grandchildren, and dogs. Not all necessarily in that order. Married for 47 yrs and he's still the best thing that ever happened to me. We have a son and two daughters. One daughter has MS, very sad.  My faith in God is the most important thing in my life.
Looking for someone who also has a myriad of unusual symptoms and is not an advocate of prescribed drugs unless absolutely necessary. I am not " a handmaid of the physician". I say "no" to Drs more than I say "OK" especially when they want to "try" a procedure. I always ask, "How will this benefit my condition" and "What are the risks". Right now, I have "erysipelous" and am forced to take massive doses of "Augmentin" so I don't get carditis. What a pain!!!!! Have Scleral lenses, so don't suffer with dry eyes every moment. Still have very dry mouth. I'm upbeat most of the time, and would like to have a friend who is going through the stages of Sjogren's as it's so different for each person.

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E-Pal number 2007-127

Name: Beth
Gender: female
Age: 63
Lives in: Florida, USA
Years with Sjogren's: 5

About me: I've had Sjogren's for 5 years and was disabled by it. I now have 3 other autoimmune diseases with the Sjogren's. I'm frequently in pain and a Sjogren's brain fog, plus very low energy.
I'm married for 46 years and have one son. I love all animals, but have 2 indoor cats. One is a brat and gets the most attention. Be nice to have some Sjogren's friends.

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E-Pal number 2007-126

Name: Sue
Gender: female
Age: 62
Lives in: Georgia, USA
Years with Sjogren's: dx 2002, symptoms all my life

About me: Hi, My name is Sue, I'm a retired 62yr old, married and a mother of two grown children, no grandkids, but we have to fabulous cats.
I've had Sjogren's symptoms as far back as I can remember. Along with Sjogren's I have several other health conditions including fibro, Reynaud's, OA, hypothyroidism and a few more. I live with dry eyes, dry mouth, brain fog, fatigue, pain, neuropathy and the list goes on. However, I believe life is good and we must make the best of it. I try to keep an upbeat positive attitude, though I will admit its hard at times.
I'd like to give and receive caring, understanding support during the painful tearful times and enjoy the craziness and laughter during the good times. So, if you're my age, younger or older and you feel the same way, I'm here.

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E-Pal number 2007-125

Name: Linda
Gender: female
Age: 41
Lives in: South Africa
Years with Sjogren's: 1 month

About me: Am a single mom enjoying the heat and the vibrancy of living in Africa. Love reading and sport and now just reading about sport ! Very new to this game - was diagnosed with Secondary Sjogrens about 3 weeks ago. Was initially very impressed with the fancy martial arts sounding syndrome; am now less impressed after reading all the sad blogs related to this syndrome. My special flavour of SS is around connective tissue issues.

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E-Pal number 2007-124

Name: Tracy
Gender: female
Age: 47
Lives in: Pennsylvania, USA
Years with Sjogren's: 6

About me: I'm 47 yo and have been diagnosed with Sjs for 6 years, but have had it for much longer. I have 2 sons, ages 19 and 22, and have been married for 24 years. I love scrap booking and card making, reading, and needle crafts. I'd like someone to talk to more personally than I do on the list and to help support each other.

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E-Pal number 2007-123

Name: Erika
Gender: female
Age: 43
Lives in: Ontario, Canada
Years with Sjogren's: 1-3

About me: I am a mother of an 8-year old girl, and high school teacher currently on disability because of SJ's. Was diagnosed last year but have had symptoms for more than 10 years including extreme fatigue, migraines, achy muscles, dry everything except mouth. Am seeking positive penpals, with a sense of humour who can be a Sjogren's "sister". Talk soon!

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E-Pal number 2007-122

Name: Terri
Gender: female
Age: 41
Lives in: Illinois, USA
Years with Sjogren's: 9 months

About me: I am 41 yrs. old and married with 4 children(3 special needs). I'm looking for someone who would want to share sjs stories and be there for each other during good times and bad. I like reading, e-mailing, journaling, playing with my pets. I'm currently taking Arthritic swimming classes which is helping me twice a week. I would like to see what medications are working best for their sjs. I  have Sjogrens B. My symptoms are dry eyes and mouth, RA, neuropathy of hands and feet, difficulty swallowing, fatigue, twitching of nerves in my body and muscles, brain fog at times, panic and anxiety. I think that's more then enough. I take Klonopin and Motrin. I pray I get e-pals to help get through these hard times with sjs and to help them also! I don't work due to 30 surgeries and now sjs which I have severe due to constant flare ups! I hope to hear from someone who would just like to e-mail and become friends. Terri

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E-Pal number 2007-121

Name: Natasha
Gender: female
Age: 31
Lives in: USA
Years with Sjogren's: 4 months

About me: I've just been diagnosed with Sjogrens due to my severe dry eye. At the moment am uncertain of what the future holds but as I'm 31 I'm looking to have another child in the very near future. I would be interested to hear from anyone who has been through a pregnancy or is looking to do so shortly. Generally I would just like to chat to someone who understands what I'm going through.

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E-Pal number 2007-120

Name: Ann Marie
Gender: female
Age: 54
Lives in: USA
Years with Sjogren's:

About me: I have yet to be diagnosed. I have a bizarre inflammation at the back of my throat. It is NOT a sore throat. The inflammation is so great that eating any food is painful; painful to swallow and also I have developed a hoarse voice.   Anyone with some ideas???

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E-Pal number 2007-119

Name: Sara
Gender: female
Age: 49
Lives in: Arizona, USA
Years with Sjogren's: unknown

About me: I read though many stories on this sight and believe me, I can relate. I was recently diagnosed but my detective work indicates that this disease has been present in my life for many years. I finally reached a peak where I was unable to "bounce back." I have found the symptoms to be humiliating, identity threatening, and a constant, painful challenge. The person I used to be, meaning very active with great stamina is now gone. So, in case this is not temporary...
I am re-inventing myself within the unwelcome limitations of this disorder. I also have Reynaud's syndrome and have a history of UTI problems, dental hell, fatigue, extreme pain, frequent headaches and leg aches (walk like a duck some days). I am determined to continue exercising and refuse to give up the "good fight" even when it feels futile to remain active. Special interest in the connection with hormone imbalances to Sjogrens, those were formerly very active and making concessions, aware of a strong spirit, and continue to research and investigate the diagnosis/treatment of this and closely-related diseases/disorders. Keep on keepin' on.

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E-Pal number 2007-118

Name: Sharon
Gender: female
Age: 44
Lives in: Israel
Years with Sjogren's: 1

About me: I was recently diagnosed with SS - my doctor doesn't speak English so it was just 1 item in a long list. I looked up this strange sounding syndrome on the internet and lots of symptoms made sense. I would like an e-pal of any age ,with a sense of humour, to talk to. I also have RA ,OA and Reynaud's. Wondering if I can blame SS for my bad memory? lol.

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E-Pal number 2007-117

Name: Helen
Gender: female
Age: 35
Lives in: Florida, USA
Years with Sjogren's: 10

About me: Hi, I felt lousy 3 yrs ago but took till May of this year to get diagnosed. I had a baby 15 months ago and during the first few months of being pregnant I had tests done for fatigue and now I finally had insurance, that is how I found out. It took until May of this year to get me on medicine; Plaquenil and Salagen. I suffer from chronic fatigue and dry eyes but not dry mouth. I have no energy whatsoever and having 2 kids 1 a tween and one a toddler not a good thing. I would love to hear your story.

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E-Pal number 2007-116

Name: Judith
Gender: female
Age: 35
Lives in:
Years with Sjogren's: 2-5 years

About me: Fairly new to the care and treatment of Sjogrens. Have RA and FMS for years. Would like to converse with others to know what it is like to experience a life with some of these limitations. Would like positiveness to rule in all I do. Like to see how others prevail and go on, happily!

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E-Pal number 2007-115

Name: Sherri
Gender: female
Age: 64
Lives in: Florida, USA
Years with Sjogren's: 10

About me: I lived in Ohio before coming down to Florida a year ago. I live in Spring Hill Fla. Have had Sjogrens syndrome for 10 years. I was recently diagnosed with breast cancer also. Thank goodness in early stages. So I am coping with two problems. I would like to correspond with someone who has had this health problem for a while. Maybe we can help each other cope. I am a very upbeat person who likes to laugh and enjoy life. Hope to hear from anyone who would like to e-mail with me.

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E-Pal number 2007-114

Name: Maree
Gender: female
Age: 36
Lives in: NSW, Australia
Years with Sjogren's: 9

About me: Have been diagnosed with Sjogren's for 9 years. Am looking to write to someone who can understand what I can go through, but also loves similar things to me. I am a 36 yr old mum, I have 2 children, love to scrapbook, learning to knit, gardening , cooking, going to the movies and am owned by many animals!!

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E-Pal number 2007-113

Name: Mary-Therese
Gender: female
Age: 66
Lives in: Australia
Years with Sjogren's: scleroderma 16

About me: I find the trip with scleroderma with Sjogren's a very lonely one and would like some sharing plus ideas time. I am a very smiling type and live my life from a wheelchair. I use public transport and get myself out a lot. I like all sorts of music outings etc. I'm working with exercise to tone and shed those dread kilos. I am into meditation.

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E-Pal number 2007-112

Name: Brenda
Gender: female
Age: 41
Lives in: Ohio, USA
Years with Sjogren's: 15

About me: Hi my name is Brenda. What I looking for is someone who has had sjs for awhile. I didn't know it is as bad as I've been reading. Would like to talk others/ to find out what it is like.

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E-Pal number 2007-111

Name: Nancy
Gender: female
Age: 68
Lives in: Spring Hill, Florida, USA
Years with Sjogren's: 9

About me: I am interested in finding a like person to email with who will understand what I am talking about when I complain about this syndrome. LOL I have found that unless you have actual experience with it, it is useless to try and have a conversation. Want to know what others are doing to work through the bad days. On the good days, I like to read, crochet, do crosswords, cook and bake. I am a positive person who tries to keep a good sense of humor going for the most part. I also am dealing with fibromyalgia, rheumatoid arthritis and have recently tested positive for Lupus.

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E-Pal number 2007-110

Name: Wendy
Gender: female
Age: 37
Lives in: Rhode Island, USA
Years with Sjogren's: 1

About me: Hey there, so this is really new to me....and I am scared. I feel completely fine I have no issues other then some hair breakage...feel great...very nervous with my positive ANA 1:180 speckle pattern. whatever that means. just feelin pretty alone.
I run a large company have two small kids and I am just a worry wart when it comes to my health. anyone that feels the same way with no symptoms I would love to talk with....but also would love to talk to someone that has had this for allot of years to know it is not a death sentence as well...anyway hope to hear from ya....

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E-Pal number 2007-109

Name: Evelyn
Gender: female
Age: 29
Lives in: Cuyahoga, Ohio, USA
Years with Sjogren's: 1

About me: HELLO MY NAME IS EVELYN I GOT DIAGNOSED WITH SJOGREN'S ABOUT A MONTH AGO. BUT I BELIEVED ITS BEEN MORE THEN AT LEAST A YEAR I JUST DIDN'T PAY ENOUGH ATTENTION. WHAT I AM LOOKING FOR INA A AND E-PAL IS SOMEONE THAT IS VERY FRIENDLY AND HAS A GREAT SENSE OF HUMOR BECAUSE I LOVE TO LAUGH AND HAS A WONDERFUL HEART. I AM A VERY QUIET PERSON I LOVES COMEDY MOVIES AND DON'T LIKE SCARY MOVIES. I AM USUALLY ON THE COMPUTER. BUT I AM AND OPEN AND HONEST PERSON AND I WANT TO MEET ALLOT OF PEOPLE LIKE MYSELF.

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E-Pal number 2007-108

Name: Tracey
Gender: female
Age: 25
Lives in: Arizona, USA
Years with Sjogren's: 1

About me: I've recently been diagnosed with Sjogren's. The more I learn the more it makes sense. I am a teacher and finding that I'm struggling a lot with work. I would love to talk with someone else who is living with the same problems. No one seems to understand what I'm dealing with and I'm tired of telling everyone "I'm fine". I'm still learning about what life with Sjogren's means and have a lot of questions.

~~~~~

E-Pal number 2007-107

Name: Rosanne
Gender: female
Age: 55
Lives in: Pennsylvania, USA
Years with Sjogren's: since March 2007

About me: I have been healthy my entire life.  Always worked long hours and I have always been very active. I don't understand how I got Sjogren's. Keep thinking they are wrong. In reading the E-pals, I looked for a common link, but we are different except for stressful lifestyles and poor sleep patterns. Would like to talk with someone who is looking for a way to beat this disease. I don't want to spend the rest of my life (and energy) in doctor's offices. I don't like the effects of medicine and need to find other ways to deal with this.

~~~~~

E-Pal number 2007-106

Name: Sarah
Gender: female
Age: 69
Lives in: Georgia, USA
Years with Sjogren's: who knows?

About me: I am still waiting on definitive diagnosis. I see the Rheumy on Oct. 19. I retired from teaching on May 29. I am just two tired to do it anymore even though I loved it. My husband died 21 years ago. I had five children, 4 girls & 1 boy. My boy died in an accident on Dec. 22, 2004. I have three grandchildren, a girl 16, and boys 16 and 18. I love to read, cook, spend time with my cats, and my children/grands. I have multiple symptoms and a recent positive ANA. I live alone and feel lonely with all these symptoms that make me sound crazy. I would love to talk to someone. I found this place in the middle of another sleepless night.

~~~~~

E-Pal number 2007-105

Name: Wendy
Gender: female
Age: 35
Lives in: Arizona, USA
Years with Sjogren's: 13

About me: Hi, I am a mother of 3 kids, who works part-time in childcare. I was diagnosed with SS, and OSTEOARTHRITIS, AND FIBROMYALGIA about 3yrs ago. Looking for anyone to chat with that understands what life is like when in pain, and having to take care of kids.

~~~~~

E-Pal number 2007-104

Name: David
Gender: male
Age: 66
Lives in: Washington, USA
Years with Sjogren's: 10+

About me: I have never had the biopsy done because when they first told me I had Sjogrens in the 90s, they also said this test will be painful, it is not a positive test & there is no treatment/cure.
Hummm, why do something painful?
Now at 66 I am experiencing extreme dry mouth. One of the medicines I should be taking can promote "dry mouth". So I have had to quit that.
I have decided to become proactive and see if there is any help & support available. I ran across this group & it seems there is at least support.
Who knows maybe some ones home remedy will help me. ;-)

~~~~~

E-Pal number 2007-103

Name: Betty
Gender: female
Age: 64
Lives in: Nevada, USA
Years with Sjogren's: 1

About me: Diagnosed 1 year ago, but had symptoms for many years. Always told I look fine. Have 2 daughters, 5 grandchildren. Retired teacher. Formerly high energy, now fatigued, etc. Would like to start sharing with others.

~~~~~

E-Pal number 2007-102

Name: Annie
Gender: female
Age: 56
Lives in: Texas, USA
Years with Sjogren's: 2+

About me: I have been diagnosed with Primary Sjogrens for about 2 years, but have probably had it for many more. I am looking for somebody close to my age that can share experiences with this disease and its related problems. I have recently developed some neurological problems as well and am not sure what to do about it.
I work full time as a school district superintendent and the stress level of the job has probably attributed to the progression of the disease.
I enjoy my grandchildren, sewing, shopping, etc. I would like to chat and share with someone who understands and can be positive...putting things in perspective.

~~~~~

E-Pal number 2007-101

Name: Anne
Gender: female
Age: 37
Lives in: Alabama, USA
Years with Sjogren's: formal diagnosis 2007

About me: I'm a musician/music teacher by vocation and a ballroom dancer and photographer by avocation. Probably like for most here, it has been a number of years from onset of recognizable symptoms to actual diagnosis. I would like to join in the fellowship of folks who understand what living with autoimmune diseases is like - the good, the bad, the in-between. I'm also interested in finding more non-prescription ways to improve quality of life. (Aren't we all?! ;) )

~~~~~

E-Pal number 2007-100

Name: Jody
Gender: female
Age: 29
Lives in: Los Angeles, California, USA
Years with Sjogren's: 1

About me: Just diagnosed with SS had problems my whole life that make sense to SS but I just always dealt with them, and still do.   I'm a graphic designer and work for myself which is nice but I don't know what is normal or what is SS, and what to look for in the future. Any communication is appreciated.

~~~~~

E-Pal number 2007-099

Name: Jennifer
Gender: female
Age: 35
Lives in: Kelowna BC Canada
Years with Sjogren's: 12

About me: I have had some success with treating my symptoms with more natural and alternative approaches. I would love to share this info so that I can help others. I would also love to chat with others as I can have bad days too.  I would love to hear from others that live in Canada as well.

~~~~~

E-Pal number 2007-098

Name: Faith
Gender: female
Age: 48
Lives in: Kentucky, USA
Years with Sjogren's: Too many

About me: I've had dry eyes/mouth/nose for 10-15 years, but my ophthalmologist kept telling me my eyes were fine. I was finally diagnosed (+ Schirmer's and ANA & symptoms) with Primary Sjogren's in 2005 while trying to get an MS diagnosis. I'm still on that path due to multiple lesions on my brain MRI (that don't change in over 10 years). My rheumy says CNS involvement is too rare and my neuro says it's MS, but I am still not convinced it's not Sjogren's. I would like to talk with anyone else who has similar issues. I also have RLS and IBS. Not on any meds except ibuprofen.

~~~~~

E-Pal number 2007-097

Name: Ingrid
Gender: female
Age: 63
Lives in: Germany
Years with Sjogren's: don't know?

About me: I am looking for some pals where I can talk about my sickness.
I am from Germany and I will come in May 2008 to Portland. My daughter leaves there. I Have a lot of problems with my health, like dryness of the mouth, muscle pains, a have a new hip and knee 1996. Fibromyalgia and arthritis. Also I am in the wheel-chair most of the time. I love to cook and work on my computer.

~~~~~

E-Pal number 2007-096

Name: Ruth
Gender: female
Age: 67
Lives in: Illinois, USA
Years with Sjogren's: 10 or more

About me: I was officially diagnosed with Sjogren's about 2 years ago. I was diag. with blepharitis 17 years ago. I had 3 miscarriages in my 20's and 30's. I also have Limited Scleroderma. I have 6 children and 16 grandchildren. Looking for someone to exchange experiences and support. My main problem is dry eyes. I am considering cataract surgery, but am a little concerned about how my eyes will react to the sun. Am I going to have to wear sunglasses all the time?

~~~~~

E-Pal number 2007-095

Name: Nancy
Gender: female
Age: 49
Lives in: Missouri, USA
Years with Sjogren's: 1 month

About me: I am looking for a pal that will coach and support me with information for the syndrome. I am 45 with 4 adult children and work in the field of education. I love to dance but I am limited with the syndrome.

~~~~~

E-Pal number 2007-094

Name: Kim
Gender: female
Age: 35
Lives in: Tennessee, USA
Years with Sjogren's: newly diagnosed

About me: Hi! I'm Kim a married mom of 2. I was diagnosed in July with SLE and SS. I am looking to talk with people who are in similar sit. I love to be with family, friends, read, and would like to find someone who understands that humor can be found in all situations but that everyday isn't perfect! A new friend who relates and would like to walk on this new path and hopefully we can laugh and if need cry (hopefully not many of those days) together! Hope to hear from you soon!   Kim

~~~~~

E-Pal number 2007-093

Name: Shannon
Gender: female
Age: 25
Lives in: South Australia, Australia
Years with Sjogren's: 1

About me: I was diagnosed about a year ago and have just started to have real symptom. I would love have someone to to chat to who really understands.

~~~~~

E-Pal number 2007-092

Name: Kimberly
Gender: female
Age: 25
Lives in: New York, USA
Years with Sjogren's: 3 months

About me: I am a 25 yr old female newly diagnosed looking to communicate with someone around my age who can relate to the questions I may have and hopefully mutually we can assist one another.

~~~~~

E-Pal number 2007-091

Name: Sue-Ellen
Gender: female
Age: 45
Lives in: Arkansas, USA
Years with Sjogren's: 2

About me: I was diagnosed with SS 2 years ago after I had a dental procedure and my parotid glands swelled up like baseballs. I have been battling the pain in the glands, extreme fatigue and muscle/joint pain. Would like to talk with someone who can help me get through this difficult time.

~~~~~

E-Pal number 2007-090

Name: Denise
Gender: female
Age: 33
Lives in: Wisconsin, USA
Years with Sjogren's: pending

About me: I have not been formally diagnosed yet, but all signs are "go" for Sjogren's. I have had blood work done a few months ago, and tested positive for ANAs and SSAs. Mostly, I am just looking for people to talk to about this.

~~~~~

E-Pal number 2007-089

Name: Mary
Gender: female
Age: 35
Lives in: Louisiana, USA
Years with Sjogren's: 4

About me: Life has totally changed for me. I have a very active disease with other related diseases. Cystitis, Fibromyalgia, asthma, costochondritis, auto immune hepatitis, extreme migraines, extreme dryness, pain everywhere, and now kidney stones. I am always extremely tired. I need a miracle that doesn't involve another drug.

~~~~~

E-Pal number 2007-088

Name: Virginia
Gender: female
Age: 24
Lives in: California, USA
Years with Sjogren's: 1 month

About me: I am a mother of two, who was recently diagnosed with S.S. I have another meeting with a specialist in a couple of weeks. I am really looking forward to talking with someone who is experiencing the same thing. Currently I have dry eyes which has caused me to have Iritis 3 times and I also have dry mouth/nose. I have been so tired and suffer from back pain daily.

~~~~~

E-Pal number 2007-087

Name: Manon
Gender: female
Age: 43
Lives in: Quebec, Canada
Years with Sjogren's: 10+

About me: I've finally have been diagnosed after 10 years of being told I was probably just depressed and pain was in my head!!! I am a single mother of a 10 year old adopted boy, struggling to keep working. I have primary symptoms (dry eyes and mouth) but also rheumatoid arthritis and neuropathy.. along with the familiar fatigue, lack of energy, no sleep... finding support is hard as most site are for people outdoing one another for worst symptoms of the day!!!! and books are scary!!!! Looking for an eye to read me ( as opposed to an ear to listen to me) . I used to swim, hike, now mostly read. I love any mystery/legal/medical thriller....I also love music, architecture, movies. Can't wait to read from a pal that gets me !!!! I am (or should be) more than this disease!

~~~~~

E-Pal number 2007-086

Name: Tara
Gender: female
Age: 24
Lives in: Ohio, USA
Years with Sjogren's: 2 weeks

About me: I am a 24 year old female with a 3 year old son. I have recently been diagnosed with SS and Raynaud's and am having a terrible time dealing with it. I currently am experiencing dry eyes and mouth but no pain yet. I am taking Plaquenil 2 times a day. I have good days and days with extreme depression and anxiety. I am looking with someone around my age that will be willing to communicate.

~~~~~

E-Pal number 2007-085

Name: Emily
Gender: female
Age: 30
Lives in: Massachusetts, USA
Years with Sjogren's: 0

About me: I am 30 years old and have just been diagnosed with Sjogren's Syndrome since late June 2007 (2 weeks ago). For the last 5-6 years, I have been dealing with autoimmune connective tissue disease symptoms such as fatigue, muscle and joint pain, and doctor's initially told me I had fibromyalgia. I knew that I've had that for several years but I felt that I also had something that was getting worse. Originally, all of my blood work was normal except my sed rate and CRP which shouldn't be abnormal. This last year my symptoms have gotten much worse and doctors attributed it to allergies but my ANA, RF, and Sed Rate were all elevated. I felt sick all of the time-my glands felt swollen, my throat scratchy and sore, and my allergies did become worse. I am looking for someone who understands how difficult it is to get diagnosed with this and to cope with it. I also want to talk with someone about my fears because I have been doing research and it can be a little frightening. I haven't had children yet and I am also nervous about how this would effect pregnancy. I have been overweight most of my life so I am nervous about the taking the drugs I may need as well. Currently, I am only taking Evoxac for the dry mouth.

~~~~~

E-Pal number 2007-084

Name: Kellee
Gender: female
Age: 34
Lives in: NSW, Australia
Years with Sjogren's: pending but likely

About me: I'm looking for someone to write to and share experiences about Sjogren's and AI as well as just life in general. I'm a Registered Nurse. I love music, reading, dogs, just general stuff, I have a wacky sense of humour and would love to just chat and maybe help someone get through the day and make a real friend.

~~~~~

E-Pal number 2007-083

Name: Kim
Gender: female
Age: 27
Lives in: Midwest USA
Years with Sjogren's: just diagnosed

About me: Hello! I am a married 27 year old CPA that has just been diagnosed by eye/auto-immune specialist by ANA/CBC. I will meet with a rheumatologist in a few weeks for further testing. We are also looking to start a family shortly, so I would love someone who has dealt with this disease and the pregnancy/first year frustrations, as well as a profession. Dealing with dry eyes, mouth, and fatigue more than anything currently. Thank you for your consideration!

~~~~~

E-Pal number 2007-082

Name: Carol
Gender: female
Age: 44
Lives in: California, USA
Years with Sjogren's: 6

About me: Hi, I'm Carol, and I was hit, like a ton of bricks, with fatigue and 'Hunch Back Of Notre Dame' stiffness 6 years ago. Like all of you, it was all because of me over or under doing it. It was also all in my head. Then one day I came across e-pals. I didn't say much; I just said I was really struggling and needed help. Thankfully, Ande, responded. I've never talked to her, personally, but we have been in contact through the serious and the silly and it has meant everything to, at least, me.

~~~~~

E-Pal number 2007-081

Name: G. Philip
Gender: male
Age: 60
Lives in: Lancaster, Pennsylvania, USA
Years with Sjogren's: 7

About me: I am a "voracious reader", have "SS" pretty much under control, w/ notable exceptions, looking to "huddle" w/ another "SS" patient to learn from one another. Also have 5 other auto-immune disorders, so life gets interesting. "MS" is the biggest driver in my life, w/ many complications. BUT - No sympathy being sought, NONE at all. Not interested in offering sympathy to anyone else either, just earnest counsel, if I can offer any. Am a "good guy."

~~~~~

E-Pal number 2007-080

Name: Denise
Gender: female
Age: 45
Lives in: Texas, USA
Years with Sjogren's: 29

About me: I was diagnosed with Sjogren’s when I was just 16. I have never known what it was like to be “normal” having always battled with fatigue, dry eyes, painful joints, and “brain fog”. I am still healthy enough to work full time as an accountant and have been married to a wonderful, supportive man for 9 years. I just want to talk to others who understand what I am going though on those bad days.

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E-Pal number 2007-079

Name: Bev
Gender: female
Age: 50
Lives in:
Years with Sjogren's: 5 (or more)

About me: Diagnosed in August 2002 with SJS. Since then I have been told that I also have systemic vasculitis with Central Nervous System Involvement. Lupus is strongly suspected. Symptoms are too numerous to list, but range from overwhelming fatigue to burning, fiery, stinging painful neuropathy to MS-Type symptoms. I would like to correspond with someone that is as overwhelmed with all of this as I am. I would like to hear from others on how they are dealing with the life style changes. If you just need someone to talk to, please feel free to ask me to be your E-Pal. I am a good listener and would like to help in anyway that I can. I would welcome anyone with multiple family members that have autoimmune disorders.

~~~~~

E-Pal number 2007-078

Name: Carole
Gender: female
Age: 59
Lives in: Sinaloa, Mexico
Years with Sjogren's: 10 years

About me: Originally from Oregon, I now live in Mazatlan, Mexico . I love the outdoors, especially gardening. I love reading! I have slowly been battling this SS for some time but recently it has been interfering with my life to the point I don't enjoy being outside. I don't like being a slave to my eye drops, the pain, the sunglasses. I feel that there is something I should or can be doing to resolve or alleviate this problem and I am frustrated.

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E-Pal number 2007-077

Name: Mary
Gender: female
Age: 53
Lives in: Florida, USA
Years with Sjogren's: 8 years?

About me: Hello, ya'll.  I'm a young-at-heart Nana with 3 grandchildren struggling to keep working (as an accounting manager) and handle home life despite having fibromyalgia, Sjogren's, osteoarthritis, and Hashimoto's Thyroiditis. I have a wonderful husband (10 years) and 2 sweet little dogs. I enjoy reading, gardening, hiking, digital photography, watching movies and community theater, and music (classical to classic rock). Would like advice on how to cope with fatigue, painful glands and joints, vertigo, and of course, dry scratchy eyes and cotton mouth.

~~~~~

E-Pal number 2007-076

Name: Michele
Gender: female
Age: 38
Lives in: Illinois, USA
Years with Sjogren's: 1 year

About me: I have been diagnosed with Sjogren's since Nov of '06. I am looking for an e-pal to chat with regarding Western and Alternative treatments for Sjogren's. Also need to hear from others who are living with fatigue, trying to work and raise children.

~~~~~

E-Pal number 2007-075

Name: Sharon
Gender: female
Age: 64
Lives in: Washington State, USA
Years with Sjogren's: 10 years

About me: I am a 64 year married old female, living in the country in the Pacific Northwest.  Probably have had Sjogrens for at least 15 years. It is pretty much under control (with medication) to the point where I can live with it, except for occasional flares. I enjoy crafts camping, photography and animals, especially my foster dogs.

~~~~~

E-Pal number 2007-074

Name: Lynn
Gender: female
Age: 60
Lives in: Ca, USA
Years with Sjogren's: 2 1/2 years

About me: I have been dealing with painful symptoms and off. I did have serious depression when I was diagnosed with Interstitial Cystitis I.C. and then a serious bronchial infection. I hit the floor and was hospitalized for depression. I am better thanks to counseling and Wellbutin. I get so down when my glands swell because of the pain. My eyes aren't bad, but I suffer with dry mouth and I had to have gum surgery. I would just like to build someone else up and correspond with about different ways to cope. I hate being the victim when I have a flare up!

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E-Pal number 2007-073

Name: Brenda
Gender: female
Age: 57
Lives in: Arkansas USA
Years with Sjogren's: 12 years

About me: Diagnosed 12 years ago but have probably had illness longer. Conducted clinical trials on EVOXAC and interferons. Have remained on interferon orals 9 years My saving grace for moisture. Seem to be getting more and more different symptoms. Lungs, nerves etc. Looking for answers to disease progression.

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E-Pal number 2007-072

Name: Michael
Gender: male
Age: 34
Lives in: Ohio, USA
Years with Sjogren's: 4 months

About Me: Confirmed RF and SSA Primary SS Feb 07.  On Plaquenil (generic) since then. No joint pain, some fatigue, anxiety depression appears to be the worst. Most difficult seems to be what to expect with this some days are good some days are ok. Overall I am just blessed with what I have. I am at the Cleveland Clinic and I think my Rhume thinks I am crazed hypochondriac. Anyone who wants somebody to listen I am here.

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E-Pal number 2007-071

Name: Mary
Gender: female
Age: 34
Lives in: Australia
Years with Sjogren's: newly diagnosed

About Me: Hi! I am 34 years old and have been under investigation for nearly 3 years. Six months ago a specialist clinically diagnosed me with Sjogren's and I will get confirmation on Friday (Results of all tests. In the last 6 months my symptoms have gotten worse. After nearly 3 years, I started believing I was going crazy, my GP tells me that I am in the Grieving Period. Would love to communicate with people who understands what I am going through.

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E-Pal number 2007-070

Name: Heather
Gender: female
Age: 30
Lives in: Illinois, USA
Years with Sjogren's: newly diagnosed

About Me: Hello.....Towards the end of last month I went to the doctor with what I thought was poison oak or ivy or a side affect to a new medication. My Dr. told me that I had arthritis and the lumps and pain in my hands was caused by it. (I thought she may have been crazy). I went through a bunch of blood tests. On Wednesday of this month my Dr. told me that she thought I had Sjogren's, she gave me a handout which was very vague and now here I am. I guess I could have had this for a long time and just shrugged all the symptoms off to something else (who knows!!) Anyway the more I read on the Internet the more concerned I get. I am wondering if I should get a second opinion or see a specialist.
God bless!!

~~~~~

E-Pal number 2007-069

Name: Karen
Gender: female
Age: 53
Lives in: Indiana, USA
Years with Sjogren's: 0 years

About Me: I need to talk with someone that understands and has been able to live & comfortably with Sjogren's. I just learned I have Sjogren's. I have lived a productive life with Lupus for 37 years. Now, I am a little disgruntled and confused about dealing with Sjogren's.
My main objective is to stay healthy so I can enjoy my personal life as well as keep my job. I work as a recreation therapist with a strong art background. I enjoy drawing, crafts and country living in rural Indiana.

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E-Pal number 2007-068

Name: Zsuzsa
Gender: female
Age: 42
Lives in: IL, USA
Years with Sjogren's: 0 years

About Me: I was just diagnosed with Sjogren's. Would like to find out about  preventing and beating fatigue and about alternative therapies.

~~~~~

E-Pal number 2007-067

Name: Nancy
Gender: female
Age: 43
Lives in: Wisconsin, USA
Years with Sjogren's: 9 years

About Me: I will be 44 in August.  I have been very happily married for 25 years and have two daughters; one married, one engaged.  I was diagnosed  with Sjogrens nine years ago after 2 1/2 years of trying to figure out  what was wrong.  I recently discovered Sjogrens World while trying to get answers about migraines that have increased over the last year to more than one a week.  The site opened a whole new world of information and support and has already answered many questions and caused me to ask many more.  It turns out my Rheumatologist hasn't been very informative over the years and I'm now looking for a new  one.  I'm not looking for any particular type of e-pal.  I'm pretty open; hoping to find someone to share the daily challenges of living in a body that you can't trust from day to day or hour to hour.

~~~~~

E-Pal number 2007-066

Name: Suzana
Gender: female
Age: 42
Lives in: New York, USA
Years with Sjogren's: 1 month

About Me: I have just been diagnosed less than a month ago. It was a 6 months ordeal. Since February I have suspected I have Sjogren's and went to the best DR. in New York. Had a lip biopsy which came back equivocal, sialogram which was negative and negative blood results. Go figure. Finally, a rheumatologist with the experience in Sjogren's had diagnosed me. I have a 7-year old boy which is the light of my life. Even though I am married my husband works in Washington D.C. and does not understand and/or care. I just started on Plaquenil and Evoxac and would like to talk to someone with experience with this medication. Also, anyone fighting this horrible disease alone (I have no family members) please contact me. I also have terrible sleep problems. Cannot fall or stay a sleep. Mornings are just horrible.
God bless you all

~~~~~

E-Pal number 2007-065

Name: Wendy
Gender: female
Age: 39
Lives in: Florida, USA
Years with Sjogren's: 2

About Me: I am 39 years old, full time stepmother to two teenage girls and married to a great person. In addition to Sjogrens I also have Vitalgo and Hashimotos Thyroid. I live in constant fearing of dying and getting Lymphoma as a result of the Sjogrens. I am in desperate need of a good support person. Hope there is someone willing to help.

~~~~~

E-Pal number 2007-064

Name: Heather
Gender: female
Age: 56
Lives in: British Columbia, Canada
Years with Sjogren's: 11

About Me: Hello, I've had SjS for over 11 years now. When I was first diagnosed didn't know much about it. Read up on it and learn't a lot. Also started a SjS support group. Would like to meet someone around the same age as myself. I find that as the years go on this illness does not get any better and in my case is progressing. Would like to hear from others who think this as well.

~~~~~

E-Pal number 2007-063

Name: Julie
Gender: female
Age: 49
Lives in: UK
Years with Sjogren's: 1

About Me: I am 49 years old from the UK and was diagnosed 2 weeks ago after 15 months of experiencing symptoms. My symptoms include muscle pain from my neck to my toes, dry mouth, which has improved after acupuncture, sore glands and general fatigue.
I am still working as a classroom assistant but rest more at home, thank goodness for school holidays! I was an active person but I have had to slow down. - Julie

~~~~~

E-Pal number 2007-062

Name: Kelly
Gender: female
Age: 25
Lives in: North Carolina, USA
Years with Sjogren's: 6 mos.

About Me: I was diagnosed 6 mos. ago by a physician who told me nothing about the syndrome except that it only causes dry mouth. Ha! Eventually I saw a rheumatologist who straightened that out for me. Mainly I experience fatigue, migraines, and back and neck pain. I am not as active as I used to be, but thankfully have not had any major issues yet. Just looking for someone around my age to chat with about the syndrome!

~~~~~

E-Pal number 2007-061

Name: Lisa
Gender: female
Age: 28
Lives in: California, USA
Years with Sjogren's: 2

About Me: I was diagnosed almost 2 years ago. I am starting school in a few weeks to obtain a degree in accounting. I would love to talk to anyone with information on dealing with pain, trouble walking and if you know if it is possible to get disability benefits with a Sjogren's syndrome diagnosis.

~~~~~

E-Pal number 2007-060

Name: Karen
Gender: female
Age: 37
Lives in: California, USA
Years with Sjogren's: 12

About Me: For almost the past 2 years, I have been going through a severe Sjogren's flare-up, along with Fibromyalgia. I’m a single 37 year old woman with ALL the Sjogren’s symptoms (fatigue, major dryness, neurological & some organ involvement). I haven’t worked in over a year because of my symptoms. I’m looking to meet some good people who can relate to me. I’ve found this disease to be VERY lonely… and have lost many friends because of it. I want to be an understand friend who truly gets you!

~~~~~

E-Pal number 2007-059

Name: Kay
Gender: female
Age: 18
Lives in: Maine, USA
Years with Sjogren's: unknown

About Me: I live in a small town. I love to walk sometimes up to 15 miles a day however that has not been possible for me this last year. I got very sick and have been tested for a number of things. today I found out my doctor believes I have Sjogrens. I don't really understand and just want to talk to some one who has gone through this.

~~~~~

E-Pal number 2007-058

Name: Denise
Gender: female
Age: 62
Lives in: USA
Years with Sjogren's: 1

About Me: I was diagnosed last year with Sjogren's - I am still at a loss to understand how it happened - I had the flu shot and the next day both sides of my face were so swollen - the doctors thought I had the mumps - it took almost three months to diagnose this disease - just feel so lonely. My children (4) don't really understand the disease - I am still working and on medication - I would like to relate this disease with somebody who has it.

~~~~~

E-Pal number 2007-057

Name: Julie
Gender: female
Age: 56
Lives in: California, USA
Years with Sjogren's: 10

About Me: Hi, I am Julie and I have Primary SS. My mouth dryness is extreme. Would like to know some one with PSS to exchange ideas, thoughts, natural remedies to alleviate symptoms. I have lots of suggestions. Happy to share info. with anyone. Want to make friends. I am a very friendly and loving person. SS really is a tough one to deal with, therefore we need each other's shoulders to lean on.

~~~~~

E-Pal number 2007-056

Name: Lois
Gender: female
Age: 61
Lives in: Arizona, USA
Years with Sjogren's: 30+

About Me: Hi, I am a retired ER nurse, retired at 58 due to my illness. I am going to college for fine arts degree. I have had a great range of symptoms, having been sick with the beast so long. Take plaq, MTX and will be starting Enbrel. Have learned to work around my Sjogrens, with the help of my doctors and good friends in the medical field. Still this illness is a bummer any way you look at it. Have learned that if I treat my Sjogrens well it will be livable. It is all about balance. Looking for up beat funny survivor spirit to write to. Will answer any questions on how I cope, and tricks from my background.

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E-Pal number 2007-055

Name: Lisa
Gender: female
Age: 50
Lives in: Colorado, USA
Years with Sjogren's: 15

About Me: Hi there my name is Lisa. I was diagnosed with Sjogren's Syndrome about 15 years ago, also I have been diagnosed with Polymyositis. I work a full time job 12 hr shifts this is very hard with my joint pains very fatigue, with this disease dry mouth I have lost all my teeth now with dentures. I'm having a problem eating with the dentures, is there anyone with this problem I would like to hear from you. I have been told about Implants but there too expensive.. can we get insurance to help pay for this problem. I have two children age 28 and 30, three grandchildren whom I know this is why I have to fight this disease. Would like to hear from you.

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E-Pal number 2007-054

Name: Dina
Gender: female
Age: 42
Lives in: Iowa, USA
Years with Sjogren's: 5

About Me: Was diagnosed 5 1/2 years ago but as always have had this for way longer. Total of 4 autoimmune diseases- Secondary Sjogren's, boarder-line Lupus, RA, and Diabetes. Side labels are Osteoporosis, Osteoarthritis, Degenerative disk disease, IBD, GERD, Neuropathy, depression, and fibromyalgia. As always I look great, like I'm in my late 30's and as always feel like heck! I started all this at 18 when I was put in the hospital for Mono, pneumonia, strep, tonsillitis and dehydration. After that it was one thing after another till was diagnosed 12 years ago with general connective tissue disease. Found a treatment that worked had it for 3 years and became allergic to the drugs but had remission for 5 years. It was heaven! This time started out slow and is building up speed quicker that I had hoped. It is a lonely disease with even family not understanding it all. Was hoping to find some one around my age that is bored and likes to talk and share ideas.

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E-Pal number 2007-053

Name: Krystal
Gender: female
Age: 23
Lives in: Texas, USA
Years with Sjogren's: one month

About Me: Hello, I was just diagnosed and so far, I have only had more pain. I'm going for a second opinion, for one cuz the doctor said I should and another I dislike my doctor. But I am excited that they finally know or think they know what has been wrong with me for years. I'm just worried about job and money problems. I work retail and well the steroids I am taking right now cause my arms and legs to hurt. I would like to work at home, but you know now how that can be. I don't want to me a home body. Anyways I can't wait to talk to others. Thank you.

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E-Pal number 2007-052

Name: Michael
Gender: male
Age: 57
Lives in: Rhode Island, USA
Years with Sjogren's: 11

About Me: Hello, I'm a single male and was diagnosed with Sjogren's by lip biopsy in December 1996. First 10 years were not bad with Sjogren's, most symptoms were under control but I noticed lately more joint/muscle involvement, which I am getting checked out in a few weeks. I'm looking for a another Sjogren's E-Pal to find out how we are managing the disease together.

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E-Pal number 2007-051

Name: Betty
Gender: female
Age: 63
Lives in: (not stated)
Years with Sjogren's: not yet diagnosed

About Me: I am still working full time but have diabetes, arthritis, Reynaud's, dry mouth and eyes and joint pain I have all of the symptoms of Sjogrens and would like to have someone with this problem to email and learn more about the disease. I would enjoy hearing someone whom has tried any alternative medicine as I have problems with prescription drugs.

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E-Pal number 2007-050

Name: Jeanne
Gender: female
Age: 55
Lives in: Arizona, USA
Years with Sjogren's: just diagnosed

About Me: I am new to Sjogrens and would like to have an e-pal who has lived with this for awhile. I have some questions and need someone to discuss these symptoms with. I would also like to hear from people who have also just be diagnosed. I am a grandma of 6 and like to fish and read and go to church.

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E-Pal number 2007-049

Name: Linda
Gender: female
Age: 56
Lives in: Arkansas, USA
Years with Sjogren's: 5

About Me: I am a mother and grandma of 2. I was told in 2001 with Reynaud's syndrome with the onset of lupus which now I have. I also have vasculitis. I been trying for disability, finally got a hearing may 14. I still work 15 hours only, barely can do that but need my insurance. Would like someone to compare notes with.

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E-Pal number 2007-048

Name: Patty
Gender: female
Age: 36
Lives in: Pennsylvania, USA
Years with Sjogren's: 10

About Me: Divorced mother of 3 boys, my youngest is 5 and autistic, which can sometimes be just as challenging, diagnosed almost 10 yrs ago, current getting no medical due to no insurance. My worst problems are sleepless nights and pain. Self employed. I don't like to moan but sometimes you just have too. Need to find someone who understands.

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E-Pal number 2007-047

Name: Maureen
Gender: female
Age: 28
Lives in: Canada
Years with Sjogren's: 2

About Me: I was given this site by a friend of mine who also has Sjogrens. She is 1 of the reasons I am still kicking around. I have primary SLE with a lot of organ involvement (extensive CNS, cardio, and nephritis (kidney. I have a secondary dx of Sjogrens, APS, Reynaud's and celiacs). When I am healthy enough I work with individuals with autism and children who are medically fragile...biggest wish is that I can work more - be sick less...

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E-Pal number 2007-046

Name: Kathy
Gender: female
Age: 17
Lives in: Tennessee, USA
Years with Sjogren's: not yet diagnosed

About Me: I have been told SS is suspected by my DO and have an appointment with an opthamologist on May 4th. (Thank Goodness!) I also suffer from fibromyalgia, connective tissue disorder, TMJ, cluster migraines, and CFS.

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E-Pal number 2007-045

Name: Katie
Gender: female
Age: 26
Lives in: Wisconsin, USA
Years with Sjogren's: recent

About Me: Dx'd with Sjogren's Syndrome due to re-current inflamed parotid glands. Along with this, I have been dealing with several other auto-immune type symptoms which have basically turned my world upside down. Up until now I lead a very active lifestyle (working out daily, sports...), but due to fatigue and joint pain, this has been limited. I am looking for someone around my age who also is very physically active and is willing to chat about symptoms, motivate...

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E-Pal number 2007-044

Name: Lyn
Gender: female
Age: 39
Lives in: New Jersey, USA
Years with Sjogren's: 1

About Me: Hi, I have been recently diagnosed with Secondary Sjogren's. I have primary connective tissue disease (Polymyositis) as well as Vasculitis, Fibromyalgia, Osteopenia, Neuroma, Raynauds, and who knows what else :-). I'd like to find an E-Pal that also has a connective tissue disease and or any other similar diseases.
Thank you very much and have a pleasant day! Lyn

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E-Pal number 2007-043

Name: Donna
Gender: female
Age: 55
Lives in: Indiana, USA
Years with Sjogren's: n/a

About Me: I am writing for a friend who does not own a computer. She is in her 50's and just diagnosed with Sjogrens. She is interested particularly in hearing from people who also suffer with rheumatoid arthritis. She's very fearful and any encouragement is appreciated. I am her "maillady".

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E-Pal number 2007-042

Name: Donna
Gender: female
Age: 60
Lives in: Portland, Oregon, USA
Years with Sjogren's: not yet diagnosed

About Me: My name is Donna and I am new to Portland. For 50 plus years I have asked Dr. why do my bowels not work without dynamite. ( oh some people are just that way, get used to it. ..why do I always have bad breath... an a clabbered tongue lots of dental problems.. Oh some people are just that way deal with it. Teeth replaced with dentures. Nearly died in 1998.. I had emergency appendectomy .. an since the lab works showed 'NO' increase in Blood count.. they finally went for exploratory.. only to retrieve a nearly blown appy..." HELLO abnormal blood work. I tore the internet apart researching DRY MOUTH.. found the sjogrens site of "10 signs" Jack pot.. I had 9.9.. all I needed was a Dr to "LISTEN" to ME.. I tested positive.. an collapsed.. WHY. WHY. WHYYY do they refuse to listen. Salagen became a miracle drug.. an I was elated beyond. But short lived, made heart thump.. cholestrol is off charts.. meds caused extreme muscle weakness within 24 hr.. HELL-O.. Hell-o my labs are abnormal...so for now...I have found that if I take in at least 32 oz of water I start to hydrate.. an eating one grapefruit a day certainly helps the bowels to work daily. Extreme withdrawal only adds to depression.
Does any one draw disability for this. P.S. I like to fish, dance, visit.

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E-Pal number 2007-041

Name: Mary
Gender: female
Age: 46
Lives in: Alabama, USA
Years with Sjogren's: not yet diagnosed

About Me: I HAVE NOT GOT A FINAL DIAGNOSIS YET. BUT I HAVE ALL SYMPTOMS. EXTREME DRY MOUTH, DRY EYES, FATIGUE, LUNG & KIDNEY PROBLEMS. ALSO I WAS RECENTLY DIAGNOSED AS A DIABETIC. I HAVE BEEN TO SEVERAL DOCTORS ANY HAD THE BLOOD TESTS AND LIP BIOPSY. ALL OF WHICH IS NEGATIVE. I DO NOT KNOW WHERE TO GO NEXT. I ALSO HAVE COPD AND COULD NOT TAKE THE SALAGEN. I USE OVER THE COUNTER EYE DROPS AND BIOTENE, ALSO OASIS MOUTH SPRAY AND RINSE. I WOULD LOVE TO HEAR FROM SOMEONE WHO HAS HAD TROUBLE GETTING FINAL DIAGNOSIS.

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E-Pal number 2007-040

Name: Chris
Gender: male
Age: 23
Lives in: Tampa, Florida, USA
Years with Sjogren's: newly diagnosed

About Me: Hey there I'm 23, about to be 24 on June 20th, was dx with Sjogrens at end of January, have a tough time dealing with it sometimes. I am really into reading, music and art. I'm going to school for graphic design and work full time as a aol tech support.

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E-Pal number 2007-039

Name: Donna
Gender: female
Age: 44
Lives in: Ranger, Georgia, USA
Years with Sjogren's: newly diagnosed

About Me: I've just recently been diagnosed after going to countless doctors, a rheumatologist who diagnosed me from my symptoms, all my blood work comes back normal, dry eyes and mouth, skin and swollen parotid gland, fatigue, aches, I had to quit my job of 17 years and I am so tired all the time. I have 2 grown children 25 and 21 and a wonderful, caring and understanding husband. If anyone else is going through the same thing I would love to talk with you.
God bless each and everyone us.

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E-Pal number 2007-036

Name: Donna
Gender: female
Age: 42
Lives in: Illinois, USA
Years with Sjogren's: 10, 2 diagnosed

About Me: I am 42 years old with 2 very active little boys (ages 5 and 2). I would love to hook up with a parent of young children who also has professional goals and is struggling with the physical! My primary symptoms are tendonitis, joint pain/stiffness, and terrible fatigue. I also have itching skin, occasional dry eyes, and dental issues.
My past was very active with running and hiking and I was definitely Type A with professional goals. In the last 4 years I have been greatly limited by fatigue, joint pain, and tendonitis from Sjogrens. I have been struggling with the healthier mindset of moderation and that, for people with Sjogrens, sometimes NOT going to the gym is as necessary as going. I am now at home with my kids, which is a struggle in that my limitations seem very amplified--I'm too tired to play, I can't squat down to their level, it's hard to get up and down, and on it goes. Although I look forward to rejoining the workforce, I am very worried about being able to get through the day.
I'm not a whiner, but sometimes I think a good "whine" is deserved! Why not? But I like to look for solutions and sometimes simple support can get one through some rough times. A good saying someone recently related has really helped--"you can't do everything, but you can always do something."

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E-Pal number 2007-035

Name: Debbie
Gender: female
Age: 42
Lives in: Pennsylvania, USA
Years with Sjogren's: 9

About Me: I have been able to live with it with out much problems but of late it has been getting worse and would like to talk with someone with more advanced stages more or less to learn how to deal with it better. I am single and like to travel. I also have fibromyalgia and other health issues.

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E-Pal number 2007-034

Name: Lynne
Gender: female
Age: 57
Lives in: NSW, Australia
Years with Sjogren's: Approx. 8 years

About Me: Hi, I have now retired from the workforce and spend most of my time with my daughter, son and 6 grandchildren who live nearby! My interests are reading, searching the net, movies and TV, swimming and travel when finance permits!
An E-Pal either in USA, Australia or UK would be great as we can compare notes on latest SS treatments etc. Around my own age would be good as well!

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E-Pal number 2007-033

Name: Holly
Gender: female
Age: 34
Lives in: Minnesota, USA
Years with Sjogren's: 3

About Me: Hello, I was dx in 2004, have dry eyes, mouth, joint pain and dry skin with a rash now. I am married with 2 sons (3yrs and 3mos)I was dx shortly after the first one was born. I have had a horrible 2006. I was pregnant and hospitalized for 2 mos with encephalitis. I was in a med induced coma for 6 wks and spent the rest of the yr recuperating and had my 2nd son, which am very lucky he is here and health. Dr.s had told my husband he may have to make a decision of who to save me or our unborn son. Then luckily I woke up and now am back working as a daycare provider as of 3 wks ago. would like to find someone to talk to about this fun disease.

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E-Pal number 2007-032

Name: Lucy
Gender: female
Age: 62
Lives in: Michigan, USA
Years with Sjogren's: 1

About Me: I was diagnosed with primary Sjogrens in the summer of 2006. Had taken disability from job because of ongoing problems with vision and eyes, including dryness and several eye surgeries.
I noticed several new people from Michigan signing on in early 2007 and enjoy emailing with others. Although I am new to Sjogrens, I am 7 years into eye problems beginning with lasik surgery. My rheum thinks I've had the disease 7 years. This is, indeed, a new chapter in my life. Being older has advantages and makes it a little less threatening. Sjogrens is certainly a weird disease as I'm finding out.

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E-Pal number 2007-031

Name: Deborah
Gender: female
Age: 55
Lives in: Illinois, USA
Years with Sjogren's: newly diagnosed

About Me: I am a special education teacher and was just diagnosed this January. I am looking forward to communicating with someone who has valid medical information regarding Sjogren's.  I am sure that I will have many questions as time goes on.  I am a strong person, am not isolated, and do not tolerate whiners. However, I do have a need to communicate with others who share this syndrome for support and information.

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E-Pal number 2007-030

Name: Fran
Gender: female
Age: 52
Lives in: Michigan, USA
Years with Sjogren's: 10

About Me: Hi, I have Sjogrens, CTD, and Diabetes, each with their own symptoms. I don't get out a lot anymore since my smile( teeth), gait, energy, etc. are not what they were. I'd like an E-Pal, someone that understands. I have a support system and they try but they really don't understand what it feels like to live a day like we do. I used to love gardening, and keeping busy. Would love to hear from you.

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E-Pal number 2007-029

Name: Sue
Gender: female
Age: 46
Lives in: Washington, USA
Years with Sjogren's: 1

About Me: I recently diagnosed with this disease, although have been experiencing symptoms for over a year. I am struggling with dry eyes, mouth, joint pain, and terrible fatigue. Would very much like to correspond with someone in this same spot.

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E-Pal number 2007-027

Name: Bonnie
Gender: female
Age: 54
Lives in: Michigan
Years with Sjogren's: 1

About Me: I am recently diagnosed with Sjogrens along with Sarcoidosis and Fibromyalgia. I am a caretaker for my elderly parents. I have no children and am not married. I recently retired due to my illness and would love to talk to someone who really understands the extreme upper back pain. If anyone has any ideas on how to relieve this let me know.

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E-Pal number 2007-026

Name: Sandy
Gender: female
Age: 36
Lives in: Illinois USA
Years with Sjogren's: 1

About Me: I was diagnosed with primary Sjogren's 1 yr ago, and being watched for lupus thus far those test have come back negative, but believe I've had Sjogren's  for 10yrs or more. I am married to a wonderful man who is very understanding on days I don't feel well, I enjoy spending time with my "furbabies" 1 dog & 1 cat, and enjoy sewing on the side, I am  elf employed and have a very hard time getting thru the days with the fatigue, muscle/joint pain and just overall not feeling well, would love to communicate with others going thru the same.

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E-Pal number 2007-024

Name: Carol
Gender: female
Age: 30
Lives in: Arkansas, USA
Years with Sjogren's: unknown

About Me: Well I haven't been dx'd except by my self, my doctor thinks I am just crazy and drug seeking. I have noticed some trends on here 1.I am a Nurse,2.I have a cat 3.I come from a military family 4.I think it started around 13-14 with a bout of mono. I have severe migraines, dry eyes, ear/sinus inf.,asthma,IBS,5 kidney stones removed, unexplained kidney pain/blood in urine, dry skin/rashes, RLS, Reynaud's, Hypothyroidism, testing for celiac dz?, depression oh and FATIGUE, (LPN, RN student, wife, mom of 2(4&10),Girl Scout leader, caretaker of aging parents and 2 siblings that wont age) so in my spare time I would like to find some that can at least relate even if I am just crazy.

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E-Pal number 2007-023

Name: Barbara
Gender: female
Age: 50
Lives in: New Jersey, USA
Years with Sjogren's: 10+

About Me: Told I had Sjogren's over 10 years ago. Have cysts in both parotid glands, recent biopsy showed HIV like cells and had to have HIV test done. Very scary. Have done my research but still need more information. Have 3 children, 3 grand children and one on the way. Work full time, very fatigued, excessive dry mouth and hoarseness. No one quite understands what I'm going through, just need to talk to someone who knows.

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E-Pal number 2007-022

Name: Ina
Gender: female
Age: 53
Lives in: Kentucky, USA
Years with Sjogren's: 8

About Me: I have Sjogrens along with fibromyalgia, IBS, and Interstitial Cystitis. Just need to correspond with someone who has to live daily with chronic pain and understands what we have to go through. I think sometimes it is best to talk with someone that experiences some of the same symptoms since can relate as to what you are trying to say.

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E-Pal number 2007-021

Name: Lola
Gender: female
Age: 47
Lives in: California, USA
Years with Sjogren's: 1

About Me: Hi! Seeking to find someone who understands the challenges of living with this disease. I was diagnosed in Feb. 2006, though had symptoms for years prior. Suffer from dry mouth, eyes, throat, cough, body aches and memory loss. Lots of fatigue and mood swings. Love animals. A wife and mother of a teenager girl. On Plaquenil. Have good days and not so good days. Work full time. Per-menopausal. Trying to figure things out. Feel lost, lonely, sad and have no friends, most people who know me don't know I'm ill. Learning to deal with multi doctors and new symptoms. If you need a cup of empathy or support, I'm here for you. Don't like to burden ones closest to me.

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E-Pal number 2007-019

Name: Kathy
Gender: female
Age: 48
Lives in: Florida, USA
Years with Sjogren's: 5

About Me: I was first diagnosed with Sjogren's in 2002 when I was experiencing dry mouth. The first Dr. I saw laughed at me. Fortunately I switched doctors and found one that ran blood work and found out the problem. My eyes had been dry for years prior which I always thought was from allergies or a result of Lasik surgery. My current symptoms are dry eyes, constipation, pain during sex, dry mouth and some joint pain. I have had some relief from Restasis, plugs and Flaxseed oil for the eyes. I'd like advice for the painful sex and constipation if anyone has found relief. I'm married, work full time and have two cats. I would like to talk to others that are experiencing similar symptoms.

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E-Pal number 2007-018

Name: Linda
Gender: female
Age: 61
Lives in: Canada
Years with Sjogren's: 5

About Me: Since I'm no longer taking Celebrex my eye problems have almost disappeared. I still use Liposic and Systane regularly but the infections are not as frequent. My main problem is my mouth! Over the last five years I've had many fillings and extractions. I now have more cavities and the dentist is recommending implants so the plate can rest on something other than my gums because they are so sensitive. I use Powell Solution (tetracycline) mouth rinse. Is there anyone out there that has had the same problem?

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E-Pal number 2007-015

Name: Kathryn
Gender: female
Age: 33
Lives in: Pennsylvania, USA
Years with Sjogren's: 2 weeks diagnosed

About Me: I am a mom of 3 (8, 5, 9 months), work full time. I was just diagnosed even though I have probably had it for years. Don't quite understand what is going on with me and what I need to do, learn, I guess you could say I am lost with this. I need help figuring out everything. I have so many questions. I just need someone to "talk to".

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E-Pal number 2007-009

Name: Becky
Gender: female
Age: 47
Lives in: Washington, USA
Years with Sjogren's: 37

About Me: Hi my name is Becky and I have had Sjogrens since I was 10. All though I never knew it. I was told I had hypergammagloblinanemipurpra until I was sent to an Rheumatologist just a month ago. He told me I had Sjogrens and since than I have done so much research. I couldn't believe what I was reading, it was explaining exactly how I have been feeling for years. It was comforting to know that my feeling and illness were real and not in my head and I wasn't a lazy person who was sick all the time. I wish I had known about this sooner I could of taught myself how to live with this instead of always pushing myself and blaming myself for how I felt. I would love to talk to someone who has experience the same as I have. I know of no one who feels the same as I so there has been no one who can relate to the same as myself.

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E-Pal number 2007-007

Name: Tam
Gender: female
Age: 48
Lives in: Virginia, USA
Years with Sjogren's: 1

About Me: I'm new this illness, I have lots of questions and grieving concern, please help! God Bless

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E-Pal number 2007-006

Name: Elisha
Gender: female
Age: 23
Lives in: New Jersey, USA
Years with Sjogren's: 2

About Me: I am a 23 year old female, going on 24 in March who was misdiagnosed for the last two years. I was told that I had fibromyalgia, and it wasn't until this past week that I was correctly diagnosed with Sjogrens. It took about 17 doctors until I found the right one. I am in extreme pain 24/7 and my entire life has been disrupted. My family doesn't understand me and the only person who cares besides my doctor is my boyfriend, but the disease affects both of us. I cry endlessly because I just want to live a normal life, but nothing I do seems to take the pain away. Everyone thinks I look fine, but they don't understand the pain I am feeling along with all of the other terrible symptoms. I can't work and am going to school online because of the pain. I have a 3 year old chocolate lab named Hershey and without her and my boyfriend I wouldn't want to be here. I just want to be friends with someone who understands what it is to be me. I don't have any other real friends.

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E-Pal number 2007-005

Name: Sandy
Gender: female
Age: 44
Lives in: Pennsylvania, USA
Years with Sjogren's: Diagnosed 5 years ago.

About Me: I am a computer graphic artist, working full-time (which is a struggle with SS); married 23 years with 5 kids (ages 21, 19, 18, 7, 5); I enjoy flower gardening (annuals and perennials, recently I've experimented with roses; I like to draw and paint but rarely get a chance to do so. I love taking rides into the country to see nature and beautiful scenery.
I am looking for somebody that struggles with some of the same issues that I do: neuropathy, brain fog and head pressure, fatigue, mental dullness, random circulating pains; I want to stay upbeat as much as possible. I would love to hear how others cope and try to live as normally as possible! Please share your experience with me.

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E-Pal number 2007-003

Name: Joyce
Gender: female
Age: 50
Lives in: Oregon, USA
Years with Sjogren's: 1

About Me: It would be nice to correspond with others who have this autoimmune disease and to see how they cope with family, work, and regular life. Also how to communicate well with the multiple Dr.s that are now taking care of me. I am employed with a job I love, and have a very active family. Love the outdoors, skiing, travel, books, and life!

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E-Pal number 2007-001

Name: Donna
Gender: female
Age: 39
Lives in: Tennessee, USA
Years with Sjogren's: 10 months

About Me: I am a single mom with two teenagers, three dogs, and two cats. I ship hazmat for a living. I love kids, animals, and life (most of the time). I was diagnosed in March with SS and jumped in at the deep in with ALL the yucky symptoms. Used to being very active and very focused, although currently struggling to be either. Looking for a friend who’s looking for a friend.