Sjogren's E-Pals
E-Pal Want Ads 2002
• 2008 • 2007 • 2006 • 2005 • 2004 • 2003 • 2002 • 2001 •
(browse all of them in one plain text file)
Don't forget to read the older ads, the more "experienced" E-Pals from previous years.
An E-pal is an Internet Pen Pal. Living with Sjögrens can be very difficult, very lonely. Only those who have Sjögrens can truly understand how we feel. It’s important to have someone to "talk" to when no one else understands. An Sjogren's World E-Pal can be that special friend for you.
"Special Requests" E-Pals Also:
Parent's of Children with Sjögren's looking for E-Pals, Caregivers of those who have Sjögren's and Teenagers with Sjögrens are listed as special requests. Please look for "Special Requests" for these categories.
* To get an E-Pal you must be listed here with your own E-Pal ad. For more information and to submit your own E-Pal Want Ad, click here.
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E-Pal number 2002-105
Name: Clare
Gender: female
Age: 38
Lives in: Australia
Years with Sjogren's: 3 years
About Me: Hi, I was diagnosed with Sjogrens 3 years ago after my left parotid swelled. After I had a biopsy on the lump it seemed to settle down. A week ago (just before Christmas) it swelled up again in a big way. My three girls refer to me as the fat faced mummy. Now I keep running a temperature and feel terrible and I am in constant pain. Is there someone who can make me feel a little less insane? I don't know who to turn to. Is this just another way Sjogrens presents itself? I hope someone can make me feel a little less isolated.
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E-Pal number 2002-098
Name: Shirley
Gender: female
Age: 57
Lives in: Kansas, USA
Years with Sjogren's: dx'd 3mos but had symtoms many years earlier
About Me: I am a stay at home grandmother of 3 children and 4 grandkids. Before I became ill a year ago I babysat on a daily basis with some of my grandkids. They brought smiles and laughter into my life. Now I am battling sjogrens' dry eyes, dry mouth, joint pain, fatigue, swelling in fingers and toes, headache and depression at times. Also having urinary difficulties. I miss my old life. I was always busy doing something. Now I have to balance my energy output with rest (on the bed) everyday. I would like to have someone to talk with and share info about these autoimmune problems. How can we make our lives enjoyable and not worrying all the time what will be the next health problem. I hate taking medicine but am forced to do it. My husband is a pharmacist so I have access to info about any medicine. Its affect on each person is so different that I would like to hear how others are being helped by the medicines or therapies that are available.
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E-Pal number 2002-076
Name: Cathy
Gender: female
Age: 36
Lives in: USA , ILLINOIS
Years with Sjogren's: 6yrs
About Me: HI, my name is Cathy. I have systemic lupus, raynauds, Sjogrens & neurological prob;s. looking for someone to talk with that understands, I like people, chatting , reading , pets... I was a nurse before being ill... thank you,,
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E-Pal number 2002-073
Name: Lisa
Gender: female
Age: 47
Lives in: California, USA
Years with Sjogren's: 35+
About Me: I was dx'd with systemic and CNS SS in 2001 but I've had symptoms since I was about 10. I'm all messed up inside and am happy that it doesn't show yet. I would like to chat with anyone who has had hand/wrist, coordination/movement, and or organ involvement. Is anyone out there on Solumedrol, Methotrexate? I am. I started Cytoxan 10 days ago. This whole thing has changes my life completely ; )
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E-Pal number 2002-059
Name: Annette
Gender: female
Age: 76
Lives in: California, USA
Years with Sjogren's: 10
About Me: I think back to when I was in my 40's and now know I had symptoms of SJS. I also have Rheumatoid arthritis and stopped weekly injections of Methotrexate 4 months ago. I have been on Plaquenil for 3 months and I don't feel any better. My HMO is not up on SJS! I would like to hear from people in my age group and compare medications and any other good advice. Thanks to a wonderful group of people, I have learned more from all of you than my Rheumy!
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E-Pal number 2002-051
Name: Synnøve
Gender: female
Age: 40
Lives in: Norway
Years with Sjogren's: 2+
About Me: Fortunately reading is my favorite hobby, even if a I was an active person. After SJS took control of my life there has been a lot of reading. I can endure the pains, but the tiredness is "killing me" and have a very negative influence on my life. Also dx with RA and Raynauds, and more is coming. Laughter has gotten me through a lot of ordeals. I would like to get to know someone around my age, who like me still have a lot of questions unanswered, but is able to remain positive.
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E-Pal number 2002-047
Name: Helen
Gender: female
Age: 25
Lives in: Tasmania, Australia
Years with Sjogren's: 1
About Me: I was diagnosed 12months ago, I started taking medication to relieve some of the symptoms but now 12 months down the track the joint pains, fatigue and other symptoms have returned, this time even worse. My rheumy wanted to put me on another drug to help (methotrexate) but I felt that was a bit extreme despite my pain and rheumatoid arthritis which is now significant. So now I have decided it is time to actively research this syndrome and find alternatives. I am only 25 and feel I have lots of life ahead of me yet and want to make the most of it without letting the RA & SjS intrude!!! :) Would love to hear from anyone who could swap tips, ideas and advice.
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